Hi everyone. I have recently been diagnosed with MS. I cant believe im even writing that 
ugh its been such a hard few months. I have a thoracic spinal lesion that’s causing numbness and altered sensation from the waist down. The healing pattern has been funny, in between my legs and bum it all has gone away and that happened quite quickly after the steroids 2 months ago. However my legs and feet are still really bothering me and don’t seem to be making much improvement 
the only thing i noticed is that the sensation seems to be normal following the dermatomes of s1/s2 down the back of my legs in one particular place…. ?
I have had this now for 3 months. I just feel like it will never end my body feels so broken its so hard to cope every day
Can anyone share their leg/foot healing pattern/timeline?
Thanks for reading
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Hi there @anonymous155 there’s undoubtedly better people here more qualified to tell you about leg and feet problems because it’s not one of the big issues for me. Generally that is. Yes, I have, had issues with walking but quite a long time ago now. With my feet, I have numbness and that has been a thing that I’ve had virtually all the time since I was first diagnosed and that’s over twenty years ago now. And yes, the numbness in my feet has been there virtually all of that time. It’s actually my toes that are affected. All my toes on both feet apart from the big toe on both feet. It’s actually the top of my toes that are numb. Constantly nowadays. I hate it if anyone goes near my feet and the grandchildren are notorious for that! Wishing you well and hopefully your legs and feet problems will be short lived.
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Honestly, everyone’s experience is different. In my own case, all my relapses have left some permanent damage when they have healed as much as they’re going to, but many people find that their relapses resolve completely particularly in the early days. I’m afraid it’s just a waiting game. For me, the key thing was getting on an effective DMD to stop relapses happening in the first place. What are your plans on that front?
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Hi, really sorry you’re going through that, it’s so horrible when your body doesn’t feel like yours and is out of your control…I had a relapse that affected my hands - horrible sensations in my fingers which worsened every time I touched anything not completely smooth.
It took about a year for it to settle to only flaring when I get too tired in the evenings (and not to the extend of where it was)
I hope for you, that yours will settle to a milder point too.
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Thanks for the reply.
The plan is to start Kesimpta next month, ive had to get my vaccines hep B etc beforehand.
the past few days ive just been feeling so lonely, even though im surrounded by a really supportive family. I just feel like no one understands what im going through and i don’t feel like ive got anywhere to turn for support. My neurologist is great at her job but very matter of fact. My hospital dont have ms nurses so ive no support there. I dont want to tell anyone i have ms so i cant join any local support group but i did look it up and its generally just older people and a lot of people who are very disabled. Im only young id really like to be able to find support among people my age . i just feel so lost sorry for the rant x
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Not knowing what age you are @anonymous155 there’s mstogether.org They are for everyone but with a leaning towards the younger ms sufferers. 18 to 35 is their favoured age bracket and their social events are garnered to that age bracket.
Thank you for that i will look into that more. Much appreciated. Im 31
Hi @anonymous155, so sorry to hear you’re still experiencing numbness. It truly sucks to have no timeline on if or when symptoms will disappear.
I’m 29 and experienced similar symptoms to you after a RRMS dx - leg numbness, then eventually full body numbness up to my clavicle. Reading back over my symptoms log, I only felt less numb in my legs after 3-4 months, but then it took an extra month before my middle felt better. I still have lingering numbness in my right hand which is my biggest annoyance and sometimes get a ‘buzzy’ feeling in my legs/feet when v tired at the end of the day. MS is so individual and different however, but hope this at least helps you feel a bit less alone or like an anomaly etc.
What’s helped me has been keeping a symptoms log (perhaps it’s just the illusion of control…! But especially when others around you start to ask less about your symptoms etc, it’s at least somewhere to have a rant and check in with yourself).
I also try to think about my symptoms day-by-day vs looking at the big, scary future. I find it so much more helpful to just try to take everything one moment at a time rather than to look ahead - none of us know what’s in store, and the only version of myself I can look out for/try and do right by is current me. Future me will have to deal with lots of good news and less good news, but what I can do for current me is feel my feelings/get any accomodations to help out where possible. My occupational health at work delivered a new slider mouse to me today and it’s been so so fab! I didn’t realise how much my other set up was hurting me before, and my hand already feel miles better.
High temperature/tiredness/alcohol are the big things which make my symptoms a little worse, so I take those into account on my rougher days, too.
Hang in there - really hope things ease up for you soon and so sorry you’re going through this right now. Really sorry to hear you don’t have any MS nurses at your hospital - really frustrating that there’s no one where it’s easy to turn to. What consoles me about finding this out in my 20s/30s is the fact that in some ways, I’m very lucky this has been caught now with great DMTs available etc (I’m also on Kesimpta and it’s been really great so far). This is also quite a common age for MS to get picked up too, so definitely check out the links shared to forums with others in a similar boat.
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