I have one lesion on my spinal cord - loads of symptoms, have been found positive for oligoclonal bands, negative for optical neuritis. My neuro has said that my numb feet and leg (which is probably my main symptom) could stay the same, get worse or maybe even get better (ha ha). If I develop a further lesion anywhere, then they would diagnose MS. My main question please is does anyone else have continuous, but changing numbness in their feet. It doesn’t stop me walking but hurts like hell. I have to use a stick now as my balance is awful too. I cannot bear anything on my feet so am dreading the cold weather coming. I read about relapses but my symptoms have been continuous since March. I’m taking gabapentin which helps enormously with lots of things such as my L’Hermittes and RLS. Three years ago I was diagnosed with ME but last week my neuro said he thought that I didn’t have ME at all - he thought it was all down to this!! I’m confused, fed-up and feel like I’m in limbo land.
I’m not even sure what I’m asking - but hope someone can put a virtual arm around me and send a hug if nothing else. Thanking everyone in advance