I received a letter from my neuro today stating my mri of brain and c-spine was normal and no further investigation would be taken, I would be seen again in 12 months…
How can I have so many symptoms which are disabling me, have caused me to leave work and also my husband has had to reduce his hours as I just cannot cope with looking after our 4 children and our home anymore.
I have had 3 episodes starting in oct 2009 with visual disturbances, followed by balance problems, memory issues, my feet feeling like they were in cotton wool, pins and needles… the mri of brain was clear, referral to neuro, appt took 8 months by which time my symptoms had gone and I was pregnant therefore I was discharged.
2nd episode in I had extreme pain in my wrists, numb hands and painful elbows referred to rheumatology, x-ray normal although nerve conduction showed radiculopathy on c7
3rd episode in feb 2012 with confusion, pain in feet, hands still painful and tingling at night referred back to neuro. Clinical exam showed upgoing right plantar, clonus bilaterally and brisk reflexes. Referred for mri scan. Also was tested for b12 and folate, both normal.
Now mri is normal and no further investigation? What can I do? I feel like a massive hypochondriac, I have muscle fasciculations visible in both feet and calfs and I also have jerks throughout my body and tremors in my hands which prove that there is something going on but I feel totally deflated that the mri has shown nothing… don’t get me wrong, I don’t want to have ms but I do want answers and the only ones I am getting are that there is nothing wrong with me.
I just feel exasperated, I thought I might be getting somewhere but I’m not. My problem is that my gp would not medicate me for the muscle spasms, fasciculations and cramps, it had to be done under the neuro who I’m now not seeing for 12 months? I am already on amitriptyline for the burning pain in my feet and hands but I don’t feel it is helping at all.
I am getting more weak in my hands by the day, I can no longer do buttons or pick small things up at times… my hands and arms hurt as if ive been doing star jumps all night… my hands cramp around anything that I am holding too… do I just have to live with this?
I don’t think I can cope anymore… I just don’t know what to do… hubby is now thinking that I should be fine as my mri was normal, there is nothing wrong with me so move on…
What now? Sorry I’m really upset and just feel really alone just now L