Hi everyone, this is my first post here, although I have read several from other people.
I am looking to see what others think regarding my symptoms as I am unsure what is ‘typical’ for MS.
Earlier this year I started having issues with my vision, where my vision would go blurred and on one occasion I had double vision but only for like 10 seconds. I have had several occasions where I become dizzy and it feels as though my head is ‘wobbly’. I don’t know how to describe it, my head/vision won’t be ‘shaking’ but it just feels wobbly and like I am unbalanced. One day I was feeling unwell, I became lightheaded and dizzy at work and was sent home. On my way home, my left arm went dead. I could not lift it or move it. I could still feel if someone pinched me for example, but it was like a numb feeling where sensation was reduced. After about 5 hours of it being like this, I was able to very slowly start moving it. Following this, I experienced tingling, numbness (but not completely numb, like the reduced sensations kind of feeling), a burning sensation and prickliness in my left arm, hand, fingers for 7 weeks on and off (but most of every day). During this 7 weeks I also had the same sensations with my left leg and foot, my right foot and my right arm, hand and fingers. These were not as often as in my left arm but could be just as strong. I also sometimes experienced reduced feeling and numbness in the right side of my head, around my eye area and upper cheek.
This all lasted 7 weeks where I had these symptoms on and off but for most of the day, every day for 7 weeks. Now I am still occasionally getting some tingling in my left arm, hand and fingers, but it is not as strong as before and only lasts around 30 minutes.
GP did blood tests and nothing came up apart from mild low levels of vitamin D. They spoke to a neurologist who said to send me for MRI scans of my head and whole spine.
I have only recently got my results for the scans, and everything seems normal, apart from early disc desiccation in my spine. It does not mention anything about lesions and I do not have any compressed nerves.
The GP has said if the scans are normal then I won’t be referred to neurology.
I don’t know what to think or do. I’m not sure if I should push being referred as I don’t have any answers for what is happening/happened to me. Surely the symptoms were being caused by something, which they originally thought could be MS.
My question as I am unsure, is would symptoms come and go like mine? Or is that not typical of MS?
Also, I have seen other posts where people say their scans didn’t show anything but a lumbar puncture did.
Do you think it is worth me pushing for a referral to try and find some answers as others have had clear scans originally too? Or do I just wait and see if anything else happens in future/if I get another flair up of these symptoms?
Sorry for rambling, I just don’t know what to think about everything.
Thank you for your time if you managed to make it to the end haha.
did you get any further forward with a diagnosis?
)
hopefully your next appointment will go well in terms of getting some answers and some help. I will keep you in my thoughts. Good luck!