Hi all, I’m waiting to see the neuro but am now feeling much better. Just wondering if I’m not having symptoms at the time of my appointment would anything still show up if he/she does any tests/examination? If not would they not bother sending me for mri or anything like that?Just worried that I’ll wait months for an appointment only for them to tell me I’m fine and send me on my way. I’ve just recovered from my 2nd, possibly 3rd, attack of this mysterious illness (but only told doc in sep/oct when latest one started) and just want to know what’s wrong with me and if and how to fix it. I’m driving myself mad over thinking everything. I would be grateful for any insight or advice anyone can offer. Thanks Farley
Don’t panic, they’ll want you to explain how you’ve felt and what you’ve experienced and they might give you a brief physical o check your reflexes etc.
My Dx was backwards as I was referred to neuro AFTER an MRI that showed lesions - my neuro asked me what I felt had been happening and I didn’t really know what he wanted so it was a messy conversation as I was expecting a trapped nerve and had no idea about MS.
I don’t think leions just disappear overnight either, so don’t be concerned about the MRI
Sonia x
Thanks tina, Just worried that if I’m still feeling better my reflexes and responses to any physical tests might be normal so they might disregard the symptoms I tell them I had and not bother with any further investigation. Am I being silly or is it possible they’ll just write me off as a hypochondriac without an mri or any sort of follow up? Obviously don’t want to get ill again or get diagnosed with anything serious but at the same time I need to know what’s wrong with me and how to make it better. My gp thinks it’s MS, my auntie thinks it’s ME as that’s what she has and I’m just so scared that whatever it is will keep happening. I’m a single mum of three young children and when I’m unwell I can’t look after them Farley
I’m sure that at lot of us have been where you are Farley, so please try not to worry too much (I know, it’s easier said than done). If your GP thought you were a hypochondriac, I’m sure you wouldn’t have been referred in the first place.
There are lots of conditions that display MS symptoms (ME and vit B12 deficiency to name two).
A good neurologist will listen to the symptoms that you’ve experienced, run a few physical tests (which may indicate neurological damage) and ask for more testing if he/she thinks it’s necessary.
Make a list of what you’ve experienced so far (as both a reminder and to pass to them) and any questions that you may have.
I hope your appointment comes through quickly hun, but we’re here for you in the meantime.
Mags 
xx
Thanks Mags, Always hated waiting for anything (gives me too much time to think!) But found out yesterday my referrals weren’t sent off for another month after I saw the doc so looks like I’ve got a long wait ahead 
Is this normal? Does it always take so long to even get on the waiting list? At least he seemed quite thorough before he referred me, had bloods checked to discount deficiencies, thyroid etc and when he checked he said I was a bit weaker in my left hand and my reflexes were more brisk on one side (not sure what that means). Thanks for your kind words, I know I should stop worrying and stick my head firmly back in the sand til my appointment comes through s my gp advised but I’m a worrier by nature and the control freak in me is really struggling too! Lol Thanks again Farley
Hi Farley, My symptoms had gone when I saw the Neuro. The numbness of my arm had gone and my sight was fully back. As said by others, a good Neuro will still proceeded with tests. Try not to worry Lorna xx
If you want answers, I think you need to bite the bullet and get yourself in the system. Maybe there will be some residual strange reflexes on neuro exam, maybe there won’t. But never mind. One way of another, they will take a history, document your previous episodes of strange stuff (worth writing down brief summary of symptoms/duration to hand over, by the way) and so the system will be all set for the next time you run into trouble (which I hope you won’t!) Do not worry about ‘nothing showing’. They are as interested in things that have come and gone as they are in things that are happening now.
Good luck.
Alison
Hi, just go along to the appointment. Let the neuro ask the questions and you give him full and honest answers.
Hopefully hell give you a follow up appt and if he thinks tests are appropriate, hell order them.
I`m an over-thinker too. Drives you nuts, doesnt it?
luv Pollx
Try not to worry. Neuros are used to symptoms varying from day to day with MS and other similar conditions. No two days are the same for me and I know that the professionals are aware of this.
Hope it goes ok.
Shazzie xx
It can take a while to get into the system unfortunately Farley. My GP wouldn’t refer me, but I did eventually get him to refer me for a private appointment (if I’d known that some private neuro’s don’t always require a referral, I’d have seen one years ago). Luckily, the neuro I saw also worked for the NHS so added me to his list for testing etc.
If you don’t hear anything soon, give the neuro’s secretary a call. Sometimes we just need to give them a little push. 
xx
Thanks everyone, I really appreciate you all taking the time to ease my mind. I will take a list of symptoms and try and be as thorough as possible with my answers (if my appointment ever comes through!) Thanks again, it’s so good to get worries off my chest and gain a bit of insight from you all Farley x