I’ve recently received a letter from one of local hospitals which I had my brain and full spine MRI done at saying basically I’m on a waiting list and to wait for a call or letter with an appointment that see the neurologist . Unsure wether this letter came from my gp or the private neurologist I’ve already seen I rang the hospital yesterday and Apparently it came from my gp and the referral was made on the 13th sept. I was then told to be patient as the waiting time was 14 weeks for an appointment. ( I had my MRI done 3 weeks ago now) I then received a call from the hospital this morning for an appointment on the 4th oct as next week it’s a nurse ran clinic only.im confused as to why it’s gone from 14 weeks to 2? Could it be a bad sign ??
hi rachel
the nhs moves in mysterious ways!
don’t worry if you are being seen earlier, it saves you from waiting and waiting.
nurse led clinic sounds like an ms nurse but you don’t usually get one until diagnosis.
go along to the appointment, ask any questions you have.
stay calm
good luck
carole x
That is not too bad, I am waiting a year to see a neurologist where I am in Ireland
Wow Harry. That’s dreadful. Is that just for a first referral via your gp? Have you severe symptoms? Do you feel your concerns warrant an mri and is it worth asking gp to refer you for one privately? I’d be on to the neurology department asking if they have you on the actual waiting list.
I have been onto them and it is a year, I went for an eye test two years ago as I felt my sight was failing. I got glasses and was sent for visual field tests, I had a few of these which were abnormal and was referred to an eye specialist who detected I had lost colour vision in one of my eyes. That was a shock but I was not told what they were thinking until my GP said they think I may have MS and sent me for an MRI. The MRI was clear or so they told me but I am getting muscle spasms in my face and what I can only describe as electrical charges passing across my face. My eye specialist is positive that the neurologist will get to the bottom of it, I have also had spasms and heat in my legs but you think every twitch is something at this stage. I am a carpenter and out doors type who has never been one for going to doctors.
Hi Harry, I’m in Ireland as well, and waited 6 months for my first apt with neuro last Feb, and that was an urgent referral!! It’s desperate. I also had a clear brain MRI with no follow up apt (seemed to just have been discharged without a word) I’ve had to go back to my GP in June as I found myself with several new symptoms in new places… my apt is Monday, so that was quite quicker, and I do think it’s due to my GP questioning at the same time that I had no follow-up. I would suggest maybe to see your GP again, especially if you have new symptoms, and ask is he in a position to send an urgent referral. I find that unfortunately we have to put a fight and insist quite a bit for things to move a bit… Not one for going to the doctor very often either, but with the concern of something that is clearly on a worsening course, there is no time to waste especially in this snail pace system.
Hi Aissa, I did contact my GP recently and they told me to head for A&E!! That is how it works here.
TBH I wouldn’t think that this is a MS nurse clinic if you haven’t been diagnosed with MS or (in some cases a CIS).
I wouldn’t be surprised if it is a clinic where a nurse is in charge of a load of basic tests - bloods? eyesight? walking rate? chest Xray? (yes, my neuro ordered one), blood pressure? etc - that would be necessary for the neuro to do an efficient consult. Not one for a definitive answer - not that your first consult with the neuro is likely to be definitive!
I could be wrong of course. I often am 
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