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Not sure what this means

Hi, I just wanted some advice really as my GP was closed today when I received the letter, I started getting numbness in my left hand then arm around two years ago, sometimes it appears in my legs and other hand/arm but mainly my left, I went to my GPs in June this year and he sent me for tests under a consultant. I received a copy of the letter the consultant has sent to my GP this afternoon stating that following the nerve conduction studies I show evidence of having severe demyelinating lession to the ulnar nerve in the forearm but not in the Guyons canal therefore he has referred me to a plastic surgeon, can anyone even have a clue what this means? I always thought I just had RSI but now not so sure

Hi Woowoo

I would have said that there are lots of demyelinating diseases so it’s just a matter of finding out which one you have.

However the plastic surgeon reference has muddied the water.

I have never heard of plastic surgeons being involved in diagnosing a nervous system illness.

Hopefully someone more knowledgeable than me will be along soon.

Good luck

Carole x

I am not an expert in any way shape or form but I do know a couple of people who have had similar problems with their hands and needed various treatments including (minor) surgery. They have had things like Carpal Tunnel Syndrome and also “trigger finger” and “Dupuytren’s Contracture” which is when the muscles and tendons in the hand contract resulting in a clawing of the hand. All of these conditions can have accompanying nerve damage.

In fact, I have Dupuytren’s on both of my hands and I should, really, have them operated on at sometime in the future but as they are currently not bad and not in my life particularly I have been avoiding this! It has absolutely nothing to do with my MS.

Both a friend of mine (who has Carpal Tunnel Syndrome) and my brother (who has trigger finger) have had minor surgery to alleviate their conditions with some success. It is very minor, routine surgery that is often done as day surgery.

It is such a thing, it does seem a little bit strange to me that there is mention of a plastic surgeon but, when I think of it, not all plastic surgeons are cosmetic surgeons and there may be type of plastic surgeon that specialises in nerve damage etc,

Hope that makes sense and that everything works out well for you.

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