Probably going to sound like a massive hypochondriac here, but here goes
I was diagnosed with chronic migraine two years ago after having to give up my nurse training during my management placement due to the headaches which affect my concentration and memory, which worsened if I was stressed, meaning that I couldn’t do the job. Then last year I was diagnosed with epilepsy (which I had before as a child, but I had tonic
clonic seizure then and partial seizures but had nothing for 11 years) I was diagnosed last year with complex partial seizures and have been put on medication to control them.
I am also on a high dose of ibuprofen for the migraines which does help with the headache part of it but not the other symptoms I get which have been ongoing since before I was diagnosed with epilepsy.
I was referred to a specialist for the epilepsy diagnosis and she referred me for an MRI and told me to keep a diary of all the symptoms I get and she referred me to a neurologist.
I had the MRI which as come back as normal and have seen the neurologist today, but I didn’t really get chance to speak to him, he kept firing questions at me about the deja vue (which I get before a partial seizure) and the flashing lights. He wasn’t interested in what I had been told to write down and bring with me to the appointment but has sent blood tests off and wants me to go back and see him in december. He has put the diagnosis down as Migraine but when I mentioned that I lose feeling in my legs he said ‘thats not migraine’ but then went back to the flashing lights.
I do realise that symptoms such as concentration problems and the lights and the nausea and IBS can be due to migraines however I’m not so sure about the other symptoms I’m getting and I’ve a feeling it might be MS but I realise that this makes me look a right hypochondriac
The symptoms I get seem to come all at once then nothing for a while, apart from the pressure I have at the left side of my head which is constant.
Pressure left temple area (like someone is pushing my head with one finger, and also a feeling which you get when you clench jaw at one side)
Partial Seizures (this happens if the migraine lasts for 3 days)
Facial numbness (Majority of the time, along with pins and needles)
tight feeling down left side of face, also feels like the left side of my face is pulling downwards)
tingling feeling across scalp
mixing words up - can say a sentence but get the words the wrong way around
Loss of feeling legs - knee down to feet both legs or sometimes just right leg
Blurred Vision left eye - when looking up and to one side
Pin pricks of light and flashes
Numbness - fingers and toes
Twitches - arms/ legs
pins and needles in feet
right sided weakness (I can’t lift a pan with my right hand)
Also the other night my right leg went completely numb, I tried to stand up and it just kept sliding to the left so my husband had to pull me up.
The night before last I felt a tightness just under my ribs which felt like I had a corset on and I could only take in half a breath, this lasted for 4 minutes (this has only happened once)
Maybe it is migraine but … something doesn’t seem right. I’m not sure if I should write everything down like this (rather then give him the diary) and take it to the GP, he was a bit funny about referring me to the epilepsy specialist (lots of huffing and puffing) so I don’t want to go and appear a complete fruit loop