Hi All
This is my first post and wondered if anyone else had experience of complex migraine?
This all started with an episode in Feb 2020, when I experienced quite sudden one sided numbness and altered vision. Has CT to check for stroke, which was clear and told it was likely hemiplegic migraine (I’ve had migraine with aura for approx 10yrs prior to this, but only ever visual symptoms).
Then had a period of low grade fevers daily (around 38.2c). I have an excellent GP and was thoroughly checked out, the only abnormal finding being raised eosinophils (a white blood cell). No real explanation but all nasty stuff ruled out.
Neurological symptoms started around Apr/ May 2020 - random fasciculations, numbness and tingling, fatigue, dizziness. At that time, it lasted about 6-8 weeks then gradually improved. I put it down to migraine.
Dec 2020 (Xmas day in fact) I had neuropathy in my hands and feet and more dizziness. GP checked bloods - all ok but eosinophils still raised.
Nothing else until summer 2021, when I had a crawling sensation on my head, muscles spasms around my ribs, prickling sensation on hands, arms and feet. GP referred for neurology/ MRI which showed no issues (apart from minor degeneration of a few discs). Neuro said he would review me in a year, and suggested this could be migraine related.
Jan -Feb 2022 - experienced really sharp pain in my face on 2 different occasions, between ear and jaw. A friend suggested this was trigeminal neuralgia (her mother has this). This happened again once in April.
Big gap with no symptoms (hurrah!) then since mid June 2022 it’s been a nightmare. Numbness, prickling, tight calves to the point I can only walk on tip toes in the morning for an hour, eye floaters, blurred vision, eye pain (optician checked and no issues), urinary urgency, dizziness that has made me sick, dead arms on waking every day, shivers and tingling pain (like TENS) daily, numb hands and feet (I broke my toe 2 weeks ago because I’ve been somewhat unaware of my feet).
I have requested a neuro review which is booked for Sept, but am wondering how migraine can be distinguished from MS? I am worried about how long this latest run of symptoms has been here for -I have a full time job and 2 young kids and am struggling.
Should I give neuro a list of symptoms, or focus on the main/ recent ones? I’ve been logging them as my memory is rubbish at the moment but worried he will think I’m a hypochondriac!
Apologies for the very long post!