I’m not even sure if there is anyone around here that still remembers me as it’s been a couple of years since I posted. But hi to old and new friends anyway.
I have a question in regard to MS, Epilepsy and migraine - does anyone else around here have all 3 and what has your neuro said about a link between them or not!
Very brief background:
I had really bad migraine when I was young but when I gave up smoking it disappeared.
My first MS symptom was Optic Neuritis in 1989 but I went undiagnosed for years after this.
I had 3 seizures in a 4 year period from 1997 - 2001 and an EEG revealed activity indicative of epilepsy, my neuro’s diagnosis was ‘tendency to epilepsy’ but no treatment.
2003 diagnosed as having an ‘85% chance of developing MS’, yes my neuro’s exact words!
2008 diagnosed with ‘Mild MS’ after a relapse left me unable to walk for weeks, and then finally after a long process with RRMS
2010 had another seizure (A&E) but in retrospect my neuro called it ‘syncope’ (faint).
In this last 12 months I’ve been complaining of regular disconcerting visual aura (silent migraine my neuro and GP call it) which last between 20 and 45 minutes.
2 weeks ago I had a full blown tonic-clonic seizure and ended up in A&E, I had had 2 visual aura the day before, 1 that morning and 4 the day after, my MS has been pretty rotten in recent weeks too.
So you see my dilemma, I continue to be given the run around by my MS team and I will be seeking a second opinion. But anything you guys are willing to share would be great.