Hi so had my appointment with neuro yesterday and have been told it’s not ms, brain scan was clear and have been diagnosed with sensory aura migraine.
That’s good news. Migraines can be weird. I used to get them from time to time in the form of headaches and feelings of nausea etc. The last one was maybe 10 years ago . With zig zag bright light across my vision I thought it was the beginnings of a detached retina but no, it turned out to be some sort of migraine
Yeah I’m not 100 percent convinced he did say I have scaring on my spine but put that down to age (51) I had floating clouds in my vision last year a few but haven’t had them since.
He did ask me what I thought it was and I said ms he replied with if o was in my 20s he would agree
Suppose time will tell
I don’t see what’s being in your 20s has to do with it to be honest. If you’ve got other symptoms I’d push for a second opinion. When I was diagnosed I didn’t have any scars on the brain, just two on my spinal cord. Alone they wouldn’t have been enough for a diagnosis of MS, it would’ve just been singular sclerosis, but lumber puncture showed evidence of previous relapses. I had to wait for a second relapse before they were willing to confirm ms, which only took about three months as it happened.
My consultant has two specialisms, ms and migraines. I started having Visual migraines about 15 years ago and mentioned it to him because it was really weird and he said they are surprisingly common and there’s no reason for them at all and they were probably nothing to do with me having ms. I go through periods of having them every week and then it could be months without anything, there doesn’t seem to be anything that triggers them. When they first started they would last an hour almost to the minute, but these days they are over and done with in about 20 minutes.
Many thanks for the reply that’s quite helpful.
I have been getting a lot of headaches but definitely not migraines I had some episodes of black floating clouds in my vision last year lasting about hour max.
Then in March thought I was coming down with shingles but no rash and then end of may had a really bad flare up, i now know the meaning of feeling absolutely exhausted numbness pins and needles prickly heat static electric sensation with vibration like someone is twanging a guitar string at the back of my groin and swallowing difficulties almost feels like I’m choking and tremors and jerks especially whilst I’m sleeping.
I finally got referred in July then had a 18 week wait for neuro which felt like a very rushed appointment I had made a diary but he didn’t seem to want to listen.
It’s knocked the fight out of me for the moment he did say i have osteoarthritis in my spine and my dr will need to see me as there’s something else on my spine but as my dr ordered the mri he couldn’t discuss it with me.
Still waiting for dr to view my results think I’ll go private as we have a small allowance through work just waiting to hear what this other thing with my spine is first.
Difficulties swallowing is the sort of thing the speech and language therapists manage. You should get your GP to do your referral, I saw them earlier this year and they did a barium swallow and did all the follow up including giving me exercises to do to strengthen the swallow.
When you see your doctor for the MRI results I’d make sure you tell him how MS was ruled out based on your age. If he finds it strange he should be easy to convince to request a second opinion.
Many thanks for that cymroglyn it’s much appreciated