After taking two years to finally get the MRI results my Neuro said “your spine is perfectly healthy for someone of your age” (I’m 55 with symptoms going back to my teens). I got very upset as I’ve had lumbar MRI two years ago detailing prolapse, severe desiccation and disc pressing on nerve which results in chronic back pain and Sciatica etc!
Anyway despite having a myriad of MS type symptoms for most of my life which are now becoming debilitating she says I do not have MS! When I asked what else could be causing the nerve pains, urine and bowel incontinence and weak swallow- she said I probably have an unknown syndrome possibly related to Hypermobility Syndrome ,Ehlers Danlos and POTS - go home and look it up and I’ll probably agree! I do not agree - these syndromes barely describe my symptoms at all.
To be fair to her I got so upset she gave me a lots of time but just wouldn’t stop going on about an unknown Syndrome and a colleague she wants me to see doing research. In the state I was in I missed the opportunity to ask more questions and she didn’t show me my head MRI.
She prescribed 15mg Duloxetine (low dose as I’m on Amitriptyline but I’ve also tried Lyrica and Carbemazipine both made me worse - I’m told I’m medication sensitive) but the pharmacy said it doesn’t come in 15mg so gave me 30mg and told me to take every other day! I haven’t taken it as it’s double the dose and I’m struggling to function with tiredness as it is without more drowsy side effects.
So should I go to GP now and or ask for another opinion or more tests? I can’t stop thinking about it and crying as I really can’t cope with much more.