Night time

Look at the time.

I’ve watched a few repeats of Bake off and Masterchef and I’m still not tired. This afternoon the pump from the walk-in shower packed up leaving me sitting on the chair paddling in water like the king in his new clothes. It was all I wanted to do today after a hard week (relatively).

I am pleased to report that there has been no need to use the life line for a whole week. I’m big enough and ugly enough to understand why:

I’m still feeling a little bit of a hole in my life but…

Best wishes, Steve

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aw steve, i feel for you.

i had to stop drinking gin because after a very happy, giddy couple of hours i’d have a bad fall.

now going out without visiting a pub is against my religion so i started drinking real ale.

still fall over so not drinking at all nowadays.

what i have noticed most is a distinct lack of joy.

so i understand you feeling a little hole in your life.

if i had the same i’d bloody fall down it!

carole x

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Hello Steve , a good blog but a bit sad for you. I hope that you manage the beast without your bottle of whisky. Now I know why St Bernard dogs carry whisky around their necks, it’s not just for folks lost in the snow it’s for when they find a poor soul with ms, it just helps to cheer them up. I don’t drink much but the last time I had a small glass of white wine my friend blamed my leglessness on the wine…maybe the wine made it a bit worse but it wasn’t the wine…the wine just took the last tiny bit of mobility I had left. Michelle and Frazer xx

Enjoyed your blog Steve, but then I always do, thanks.

We may have a lot in common health wise, but in alcohol we are at different ends of the spectrum. I haven’t drunk alcohol since I was in my twenties, not because I was naughty with it, but I haven’t ever found one that I like the taste of, and believe me, I tried lots!

I have my vices in other ways! Lol

Enjoy your ’ whiskey free time.’

Pam x

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BUT I DON’T WANNA GO TO BED!

To you all. I hardly post but I get all of ya… I have had ms for many yrs now & everytime i see the neuro i’ve asked what type of M.S i have & all he says is time will tell. I did not qualify for disease mod therapies all the nurse said was you have chronic progressive and was sent away with diazepam & Gabapentin.

Now i have stopped all meds last april & have resorted trying to deal with this stuff with nothing but convention meds or alternative meds( which i prefer BTW)… but with limited value now as things have amplified…Keu word …BedTime…

Now i suffer intractable pain all over mainly legs which is spreading spine everywher. I hate bed any bed & sleep as this is what sets the next day pain to max. Has anyone else got this problem? Anyhoos I get the Alcohol thing as it does help since its been nearly a year since packin up them cigs. Booze puts a smile on face /wipes out all depression , ok only for a while but Hell we all gotta smile with comfort & do what we have to do sometimes…

I have lots to say but would fill up the forum…any advice would be appreciated as i have turned into a realist and have little faith in professional advice at the moment by the proffs… apart from yeah they can actually see wass goin on in our bodies, if only we could then we could unlock alot of our own individual probs…

I have learn’t alot through trial & error which is why I got off them Gabba’s as they did not work after 12 yrs on em…No more

Im ranting now so great blessings to you all…

Helping others makes me smile…:))

Xxx