I live in France. Been here 11 years. I was misdiagnosed 11 years ago as having suffered a stroke. I had a relapse 4 years ago and have been deteriorating since then. My problem is on my left side mostly. I have difficulty walking and my left hand is becoming progessively more useless. Because I was only diagnosed a month ago, I am trying to learn and understand this disease and symptoms.
Today I have been having a symptom - like someone is touching my nose!! Do you think if I am having these symptoms, that I should get in touch with the neurologist, or shall I just wait till Sept 5th when I have an appointment booked? I get SO many odd things, fluttering sensations in my muscles, burning muscles etc.
I’ve been told there is no treatment for secondary progressive.
Also - if there’s anyone else with SP MS on here that we could share moral support, that would be nice?