One thing i want to say to everyone and i know its easier said then done … DON’T STRESS!!! or at least try not to.
Stressing is only going to make it worse and make everything seem worse. I know it is all stressful and scary but to take some control back over your body then please try not to.
I found it helpful writing everything down and dating it all / keeping a diary. This way i don’t get flustered when im at an appointment and i know exactly what’s happened to my body, again this makes me feel like i have some control over things which i find important.
I too have had symptoms since 2014 if not earlier and only got my diagnosis 5th feb 2016 so i completely understand how stressful this is but everyone ive spoken too have had to wait a long time so your not alone. Also the limbo drives you mad! For me that was one of the hardest parts.
Ive had symptoms such as numbness, pins and needless, burning, memory loss, strength loss, balance loss … Last year i was paralysed for 6 weeks but didn’t regain all sensation fully for about 4 months but everything is pretty normally again now. I have a baby brother and i too couldn’t pick him up sometime which broke my heart when he wanted to come to me.
Now to end on a positive note… the burning down my right hand side which i spoke about in my earlier post… i was at the MS clinic on Wednesday and im not relapsing, they think its the damage that has been caused in the brain in the past is starting to heal. so because its still nerve damage trying to repair, that’s why im getting the burning. So… we can heal some of the damage i think this is excellent news
If anyone is in Merseyside or the Manchester area and want to meet up for a chat or to swap storie’s or just to hang out then drop me a message and let me know… i find being with people who understand helps me.