Good evening everyone.
A few months ago i had some lower leg sensory issues which has not stopped and got sent for a brain and spinal scan due to my family history of MS…
My dad who is passed now 30 years ago had MS most of my life and progressed to being bed bound. …my sister also has MS and is reduced to a walking shuffle at best now…
So on Saturday i got called into the hospital to discuss my scan results and were told that i had leisons similarly to that
Related to MS…
I was told my symptoms were not yet severe enough to treat and unless something progressed to come back in 6 months to check how i am.
Im in such limbo as i know what maybe to come which is scary.
Im 56 years old now and reading on LOMS is not good reading…
I would welcome any advice guys…
Godbless…John
I’m in the same boat, I was diagnosed in December 2023. My neurologist said he won’t treat me as my symptoms are mild. So I’ve been referred to another hospital to be seen by the ms team. So at present I’m fighting for treatment, because ms has affected my bowels, bladder, digestive system, blood pressure, can only feel 15% of my head, face, and chronic fatigue.
My last neurology appointment I explained to him what they say about LOMS and he referred me. They also state on the nice guidelines regarding treatment. If you don’t feel you can advocate for yourself you can get support from PALs .
Im so sorry and dissappointed to hear your situation…
I guess we must not settle for anything less than what we need not want…
Stay strong my friend…
Im trying to stay focused and i have my faith however in quiet times your thoughts do drift off to what might be around the corner…
Did you tell the hospital about your Dad and sister?
Keep a good note of your symptoms especially any new ones. As soon as they get worse or any new ones appear go back straight away.
If it’s any consolation then looking back I had various symptoms which I didn’t realise were early symptoms of MS and ignored them. Then when , after an obvious symptom, I was diagnosed I was then started on treatment pretty quickly. In the meantime, have a look at something like the website of Overcoming MS or indeed the MS Society website and follow the general guidance on diet, exercise, stress and Vitamin D.
Hi there.
Appreciate the response.
Because of my sensory issues and family history thats what pushed the scan forward to be honest.
So they were aware of my family history of ms from the onset.
i am keeping a diary and will do as you suggest and contact them with any changes or progression.
Thanks again.
All the best and I hope all goes well for you