So just found out my group of friends (inc my brother & sis in law) have all purchased tickets to a NYE party at our local & haven’t included me & my husband. I’m really pissed off about it as they have invited us every year (diagnosed this year). Feel abandoned & singled out
On hell that’s not nice, have they said WHY and if not have you asked, I know I would, if you feel you can still do it, then say. For me as progressive MS I don’t do anything on a evening, only things in a morning, so no night social life with friends, but I can’t manage it and I’m thinking you still can…ask and see what they say, good luck.
Jean
Assuming that as you are now diagnosed you have grown two heads, sprouted fins and recite Jabberwocky constantly whilst riding a unicycle.
People make so many assumptions about us once we receive a definite diagnosis; I am fortunate enough to be in full time employment and the number of people who assumed that a diagnosis of MS meant that I could no longer work - hopefully I have many more years of employment left in me; people assume that I cannot do any form of exercise - and are gobsmacked when they find out I still do Taekwon-do.
The list goes on, and on, and on. I’m with Greenhouse - I would like to know why I was no longer on the list of invitees to an event I had been attending for many years. Go ask the question, find out if it was just assumed you would not be able to cope with going out now that you are diagnosed.
Since the law deems us MSers as disabled, I start to realise how much of the World is geared towards the able bodied only.
Hey-ho NYE is just a date.
Seasons greetings eveyone.
Oh I don’t like that but people appear to think that’s the norm when you get a dx, they stopped asking me a long time ago.
Be brave, ask them why and then tell them that you would be the person to decide if you want to go or not, nobody else.
Wishing you a lovely Christmas and a happy new year.
Pam x
Call me a party pooper, but I’d be delighted! Hate it, probably stems from having to work every one for years,hospitality. The weeks of work,
leading up to…6-8 hours! Ring your local see if they need extra staff,then you could say couldn’t have gone anyway!, probably can’t employ casual staff now, so many didn’t used to turn up on NYE, had to be wary who you took on Nov-
Dec
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It is just typical of peoples responses when you have this condition. Over the years as my condition was worsened you start seeing less and less of people.
The problem is there lifestyles and choices are going in one direction and yours now is going into another. Afraid usually the don’t match and hence you loose the contact or they just assume your disabled with everything. Bugs me as discussions with friends and family also involve the words “multiple sclerosis”. I had a life BEFORE it that wasn’t centred around it.
This article if you read it really does really answer why https://multiplesclerosis.net/living-with-ms/ms-turns-friends-strangers-strangers-friends
Trying to find people with your condition who experience the same issues is bloody hard to find but they are around if you start looking for them.
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True say, birds of a feather flock together.