I’m new to this forum and at the moment I’m not sure if I have MS or not it’s been stated ‘most likely’ by the neurologist. Long story short I experienced double vision and I was admitted to hospital nothing showed in the scans (ct and MRI) yet I presented with webino syndrome / internuclear ophthalmology, discharged after IV of steroids then oral dose. I just feel like I’ve been invaded in my head, feel light headed, tired and almost drunk like not sure if anyone has experienced this before but I’m struggling with feeling like this constantly as I know my brain isn’t functioning on full capacity. I’m hoping once the steroids are out of my system fully it will help with this feeling. Not really sure what I’m dealing with other than my whole world has been turned upside down. I had just started a new job and now can’t see too great.
its been the longest month of my life so far, I’m not out for sympathy and I know everyone’s symptoms are different I just wanted to understand things as much as I can, I’ve read quite a lot of info and I’m still not diagnosed just wondering if I’ll get me life back.
I’m sorry to hear of your troubles. None of us can sayif you have MS but im pretty sure your double vision and other symptoms will dull down if it is MS. I too had double vision back in January and this resolved after 6 months or so. I was fitted with a prism onto some plain glasses which allowed me to drive legally. Do keep us posted of what happens.
Whatever is causing your symptoms is scary, I hope you get some clearer info soon.
My experience is with MS and so I remember in the early stages when I hated the lack of certainty and was terrified whenever I had a new or different sensation not knowing if it was related to my new condition. One of the things that my MS has helped me to understand is that no matter what the status of our health things can and do change quickly. There are not many absolute certainties. Whilst it is massively difficult (it has taken me years) I would suggest you try not to worry about stuff that has not happened or you can not control. Another thing I have learned (nearly) is not to waste valuable energy getting angry, you might need it for better stuff. Once or if you have a diagnosis you will know what you need to study. In my case trying to understand each new “normal” enables me to adapt and enjoy everything to the best of my ability. I suggest that you try to build a network made up of reliable friends and family as well as professionals to help when you need it.
This forum is also a good place because there is usually someone who has had a similar experience and is willing to try and make it easier. It is also a great place if you need to vent your feelings because it is highly likely that there are folks here who can offer experience based empathy.
Thanks for the wise words, part of me is very much coming to terms with not what I can’t do but what I can and it’s still early days I think I’m a bit in limbo land presently and I feel maybe once I know what this is it will just help me to understand better ( I hope) the ms site is really useful so far.