Hello, this is my first post but I have read through a lot of the threads and have found so many people have the same challenges as me. This makes me happy and sad in equal measure as I don’t like to think that anyone else is hurting as much as I am but it’s also nice to know i’m not alone I am still in limboland, waiting for my clinical diagnosis which various doctors have told me is a formality as my sympton list is long!! I am hopeful that I will be able to contribute to discussions and give support as well as find it on this forum.
Hi, welcome to the forum! yeh, it does help to know other folk are in the same boat and understand how you feel.
This is a friendly site, with folk who are long term MSers, those like you in limboland, and of others who care for those with MS.
I dont have MS, but was wrongly diagnosed with it for years!
Medics have given me a half diagnosis of; spastic paraparesis/cause unknown.
Look forward to seeing you on the boards.
luv Pollx
Hello SharMac
I’m a little further along the road than you - was diagnosed in October and have met my concultant neuro twice now. We’ve decided on my treatment now and I’m just waiting for the green light to begin in.
After being hospitalised in October (which led my diagnosis) I had another bad relapse and more steroids in January. They got me back on my feet but I’m currently back to being really off balance and struggling to see clearly (amongst more!)
I agree it’s a feeling of guilty relief at times coming on to these forums but I honestly felt SO much better after my first post. It\s wonderful that we all have a place we can go to to chat and ask questions with people that really know. I’m very lucky that my family and friends have been so supportive but it can be very hard trying to explain things at times because they’ve never experience anything like what we have!
Look forward to hearing back from you and talking some more
Tasha xx
Hello SharMac
I’m a little further along the road than you - was diagnosed in October and have met my concultant neuro twice now. We’ve decided on my treatment now and I’m just waiting for the green light to begin in.
After being hospitalised in October (which led my diagnosis) I had another bad relapse and more steroids in January. They got me back on my feet but I’m currently back to being really off balance and struggling to see clearly (amongst more!)
I agree it’s a feeling of guilty relief at times coming on to these forums but I honestly felt SO much better after my first post. It\s wonderful that we all have a place we can go to to chat and ask questions with people that really know. I’m very lucky that my family and friends have been so supportive but it can be very hard trying to explain things at times because they’ve never experience anything like what we have!
Look forward to hearing back from you and talking some more
Tasha xx
Hiya
I just wanted to welcome you to the site.
I was diagnosed in 2005 and have used this site since then. I have made loads of friends on here and have found their help along the way invaluable.
Look forward to chatting with you.
Shazzie xx
Hello SharMac Welcome to the forum. I was diagnosed last august. Look forward to getting to know you. The guys on here are really helpful and supportive. Noreen
Hi SharMac,
I’m a bit of an MS fraud (I have it but its very mild) - my main contribution is an occasional joke (sometimes a bit rude) and occasionally some words of wisdom from me granny.
Welcome to the family
JBK x
Hello and welcome! You’ve found a great site here. Lots of advice and support available. Take care. Ann xx
hello and welcome sharmac
try sending for one of the ms society publications for whichever flavour of ms you have.
i’m rrms and the booklet is really good, it gives little diagrams of myelin that has been nibbled away so its fairly easy to understand our difficulties.
the booklets are free.
carole x
Hi, thanks everyone for the lovely welcome I look forward to getting to know all of you! Just to give a little bit of my background… I was diagnosed with Thyroid Cancer in 2007 and had 2 ops and radiotherapy along with an injury in theatre with left me with nerve damage and fibromyalgia. Over the years I have gradually got worse and worse, having walking difficulties and chronic widespread pain and fatigue. I am 36 but feel like 96, use a walking stick and am generally a mess haha! In November I woke up one morning with blurred vision in both eyes which went on for a week until one morning when I woke up and couldn’t see out of my left eye and my right is blurry. I was diagnosed with Optic Neuritis and referred for a CT scan. The results today were inconclusive so I have to wait for my neurology referral appointment to finally come through and will then have a lumbar puncture and an MRI to check for demyelination. I am off work just now as I work in Benefits and Council Tax with my local council so im not able to do my job. Sorry if ive bored you all please feel free to chat to me any time, im always happy to listen and offer a shoulder when needed Love Shar xx
Hello, Just wanted to welcome you. I was diagnosed in november. This site has helped me so much because I felt so alone but now with ppl like poll and joy and everyone else I dont feel alone anymore and I hope you get some comfort from it too. Krissy x
Hi and welcome, I was dx in nov 2013 with rrms and started on betaferon about six weeks ago. Like you, I read the posts here more than I post myself and it is a guilty relief to here from others with the same/similar symptoms, Best wishes Sue x
Welcome This is a great place to be able to talk about anything, everyone is friendly and gives you support and reassurance. The jokes give you a chuckle when your in a low. I was dx at end of han 2013, my last year has been a roller coaster, but the people on here hace really helped, understanding some of the strange things that nobody else understands. I hope you don’t have to wait too long for an answer. Barney
Hi Krissy, Sue and Barney and thanks for the welcome! I already feel so much better just being able to read through all the chats on here, it has really helped xx
Hi Shar
Welcome to the nuthouse plenty of great folk on
here as i am finding out each day
all the best
sheep
Hi Shar
Welcome to the nuthouse plenty of great folk on
here as i am finding out each day
all the best
sheep
Hahaha thanks Sheep that made me laugh hope you are good today x