Hi everyone. Well I have only been dx for a week and finding it so hard to get my head around it. I have been a fibro warrior for over 20 yrs and this has just completely blown me. I am a mum of 4 teenagers but also a career for my hubby and I am so worried about not been able to look after my family. I don’t talk much about how I am feeling with the family I just say I am doing ok. I want my old life back more so I want my independence back but I am sure many of you can relate to that one. Sorry for the rant but if I don’t type it down I think no get it right I know I would just break down which is pretty much what I am doing when everyone is in bed. Love hugs and spoons to you all xxx
Hello Kerry and welcome aboard this jolly, but wobbly forum!!!
Being diagnosed with MS is a very big thing.
It takes a lot of sinking in , accepting and then finding who and what can help you cope.
Being brave and not admitting your fears, isnt going to do you any good in the long term.
As a carer, you need to be as fit and healthy as possible.
Carers need tlc too you know!
My hubby is my primary carer and he has RA, which has been extremely painful and difficult for him to cope with at times, never mind that he has me to look after.
Do you think having extra carers coming in would help? I have 2 carers, paid for with Direct Payments.
It`s very early days for you, but give it some thought eh?
pollsx