Quick background - My girlfriend Liz was diagnosed in August in the US on a business trip, she’s since come back to the UK and been seen on the NHS. In late September we saw a Neurologist [name removed by admin] and he recommended a baseline MRI scan which Liz had last month. She then saw an MS nurse in late November to talk about treatment options and would like to try Tecfidera. The nurse also mentioned that her main port of contact for any worries or new symptoms should be Neurodirect.
Right so back to the present day, [name removed by admin] has since contacted us to say a couple more legions were found since her initial scan in the US. Liz has also just started experiencing a new symptom, a burning sensation in her thigh. We’ve tried contacting Neurodirect but after several tries and being on hold for up to 40 minutes we haven’t been able to get through. We’re not sure what to do? surely she needs a reassessment as this has happened so soon after diagnosis? We are still waiting for Liz’s prescription to Tecfidera too. Any advice would be greatly appreciated.