Hi, coming out of relapse that affected my left side (my arm didn’t belong to me anymore, and my leg was working at 50%) - and I’m getting persistent pain in my calves. They feel really tight, as if heavily overworked, and there’s quite a strong burning pain that’s there for most of the day. Stairs are really uncomfortable I’m used to tingling/pain/hot sensation in my feet, but this is new. Also getting quite strong pain and stiffness in my upper leg/hip area.
My osteopath thinks my left glute muscle isn’t working properly, shifting the work to other areas. The discomfort is getting me down - I’m not sure if it is musculo-skeletal or neuropathic. Does this ring a bell with anyone??? Thanks
Hoping everyone is surviving - at least we did well at Wimbledon…
As Poll said, muscle relaxants like Baclofen can help. Also, Amitriptyline is good for burning type pains, but it’s best taken in the evening as it makes you dozy. But don’t take it too late as it can give you a hangover type effect in the mornings if taken too laste in the evening.
Then there are the drugs like gabapentin and pregabalin which are more about nerve pain. Some people get on with them quite well. There are other drugs for nerve pain, see what your neurologist and/or MS nurse suggest.
The hip/butt pain (quite literally the pain in the arse), is hard to deal with. I have it in my right hip. Basically, the nerves aren’t getting the messages they should do, so your muscles are not working effectively and that’s causing pain in the muscles that are trying to do more than their fair share. You may find that this is a relapse that will remit ok and you’ll get back the correct hip action and the pain will stop. But otherwise, see what your physio can suggest. You can try using ibuprofen gel or other topical pain relief, or maybe TENS therapy would help. It is possible to get FES to stimulate muscles other than just the peroneal nerve (ie in foot-drop). But it’s hard to line up electrodes on ones own backside! Ultimately, if it becomes a permanent problem in the future, that’s a possibility to bear in mind.
I used to suffer with terrible stiffness that only came on after a bad relapse back in 2012. So now I have been meditating for over a year and my stiffness and aches and pains have greatly reduced, and I mean GREATLY. Maybe it’s something worth considering. When I asked my Neuro about it back in 2014 he said ‘there’s a pill you can take for that’. I politely declined (I take enough). Anyway, I didn’t expect mediating to ease my troubles but to my delight it really has! It was honestly really getting me down so it’s a huge relief that it’s better. I practice Vedic meditation twice daily FYI. Good luck! Xx
I am on botox injections to relax my hamstrings I do suffer a lot of general pain all over which I deal with by painkillers codipar I think. I don’t get on with any of the drugs mentioned and when I tried to a baclofen pump I went like a jelly, awkward according to my Neuro. Unique is how I like to be seen .
Thanks everyone for a great range of suggestions! I’m going to call the MS nurse to see if I can get a referral to the neuro-physios, who have been a great help with balance problems in the past.
I’m not taking any drugs for it at the moment, but would consider it - I’m starting to avoid climbing stairs and that’s not a good thing!
Off to the theatre tonight, which is a great treat, so I’d better get dressed
Thanks again, it’s good to know that I’m not making it up xxx
Struggling with legs that throb - especially at night and with shooting pains around ankle, toes and base of the feet Had this before Does physio help?
I have reflexology on my feet once a week and it’s a great help. Local ms society provides this free of charge. I also use a magnesium spray at night. Spraying it into my palms and rubbing it into the soles of my feet helps me.
I’m used to tingling/pain/hot sensation in my feet, but this is new. Also getting quite strong pain and stiffness in my upper leg/hip area.
