Hi everyone. Ive been suffering from random widespread symptoms for about 18 months now and I have a really strong feeling it could be MS. If anyone would be kind enough to advise if they think its worth me persuing a consultation with a neurologist I’d be very grateful because the GP’s and various specialists I’ve seen I’m sure all think I’m mad and making things up…it was only reading some of people’s experiences here that has made me feel like actually I’m not alone and its really happening to me. I will list some of the symptoms below:
Shocking, sharp electrical type sensations (I imagine its what being tazered would feel like to be honest!)
Right sided hypersensitivity
Right sided muscle tension and stiffness
Crawling, prickling, tickling sensations on various areas of my body
Urinary issues, urinating 3+ times per night, bladder sensations and urethera urgency day and night
Bowel problems
Feeling squeezed tightly around my diaphragm
Horrendous anxiety episodes
Inability to make any decisions or plan anything (even where to go shopping or what to eat)
Weight loss
Palpitations (monitor shows some arrhythmia)
I think it is particularly difficult to get to the bottom of things when a person has a whole host of symptoms firing off at once. My personal experience of RRMS has been characterised by discrete relapses with a definite trajectory of building/receding over days, weeks or months. Even when there have been several things going on at once, each particular thing has followed this pattern. Now I’m not saying that this is the way it always is, just that this is how it has been for me.
You are clearly having a difficult time at the moment, and I hope that you find out soon what the problem is.
Hello sweetheart. Yes, of course you should see a neuro. Your GP should be referring you. All those symptoms could be MS. They need proper investigation.
\boudsx
Hi Alison, thanks for your reply and well wishes.
The truth is that these symptoms started quite subtly and have been gradually building and waxing and waneing to become the list they are today. I had no idea they could or might be connected to a wider picture and Drs will only look at their small specialism area (gastroenterology for example).
If you dont mind me asking, how did you get to a diagnosis and were your symptoms more of the obvious ones (sight issues, balance and mobility) that informed the referral to neurology?
Loss of strength in one hand and numbness/disordered sensation from rib cage downwards was what took me to the GP and triggered the referral. That was my first relapse, that came on over one weird weekend. I was dx a few months later after my second relapse- double vision. It’s a bit of a mixed blessing, being an obvious case, but I was an obvious case and it was all very straightforward.
Hi there,
Thanks for your input. I have explained my right sided symptoms to many healthcare professionals but they just seem to think its not real as I’m not falling over or anything severe like that. I am hoping to seek a referral but I have had new and growing symptoms the last few months so was trying to work out whether I should seek private care for speed (in case I’m having relapses). Thanks and sending you good wishes