With regards to my ms I first had issues late 80’s/early 90’s with numbness in my hands and got referred to the hospital but the appointment was all a little ‘dismissive’ and then numbnese went.
I did have some other instances of in the 90’ tingling & numbness for very short periods of time and then I had issues of numbness in my legs so I went to my gp practice where the doctor told me it was ‘all in my head’ but I knew it wasn’t but eventually they said they’d refer me; it never happened!
My work’s company chairman knew I was having some issues and told me that they would pay for me to see a neurologist along with any required tests and I received my dx late 1999 early 2000 and I started the rebif (beta intereron) treatment within 5-6wks as a self funding until NEICE changes ment I could then recive the treatment under the NHS at that point my neurologist then saw me under the NHS rather than privately.
I’ve had numerous spels of ON but I’ve only had x1 were it caused blurred vision in one eye, most of the time it just causes mè a great deal of pain when I move my eyes (makes me want to take my eyes out and let them soak in warm soft water to then rest on a fluffy white cloud ~ crazy I know but that’s me!).
Unlike you I’ve not noticed any delay in my vision vs. movement or spacial awareness but last year I moved from reading glasses to varifocals but I just put that down to being 54yrs young.
One thing I do find a day to day challenge is brignt light; be it natural daylight ~ I do love my Gucci, Chanel, Prada sunglasses or sitting at home watching tv with no lights on other than a light in the hallway.
Fatigue is something that those living with MS can and do experience; its something that I’ve experienced but for me its at its worst when I’m having a relapse and right after and then it isnt an big an issue.
Right now everything regarding MS and your MS is very new to you and its natural to feel anxious and nervous; each and everyone of us here on this forum diagnosed with MS has felt anxious, nervous so you are not alone but as I said in my previous reply make sure you note down any issues big or small you are experiencing, any Q’s big or small, trivial, major, minor, daft (there are actually NO daft/minor Q’s…if its in your head then its a Q that you need to ask) so that you can discuss them with the MS nurse.
With regards to medication the MS nurse and the neurologist will be able to discuss options with you, you could have a look on this website as they are all listed and if you have a look in the coming wks before an appointment with a MS nurse as it might help you prepare regarding medication conversation.
Following me having what i considered a large relapse last year I have changed my DMT (treatment), for over 20yrs I remained on the same treatment and on the whole I think it worked well and I didn’t experience any side effects which in my head was really positve. I’ve changd DMT and tomorrow (2.3.23) I’m going for the 2nd part of infusion; 1st infusion happend 2wks ago and I had absolutely no issues and I haven’t experienced any side effects which I’m seeing as positive.
As your diagnosis has only just happened I can see why you might think the issue with yor knee might be MS but it could easily not be MS; for me I’m the opposite in that I dont think things are MS and could just be being 54, having a thyroid issue, going through the menopause, having a high heart rate and now having a gyne issue…
I hope your MS nurse appointment doesn’t take too long to come through & I hope you don’t allow everything MS overtake you ~ find some inner strength and take care of yourself