Diagnosis

Hey,

I’m new to the forum but have been on my MS journey for about 18 months now. There’s been a lot of talk about high risk of developing MS, and discussions between my GP and neurologist about the highly likelihood given tests and symptoms, but I am still very much in the dark about what is happening.

I received a letter for an appointment with my neurologist which will be this week, and I originally thought it was for a further MRI to look for new lesions, but it’s a clinic appointment.

Please would you share your diagnosis stories, i.e. how you were diagnosed, what was said, what followed etc.

I’m feeling really lost and anxious and would appreciate any insight you might have.

Thank you :slight_smile:

Hi Jasmine Sorry to hear you are in the dark :frowning: it doesn’t help with the anxiousness does it. I was just diagnosed officially at the end of July this year,though it was first mentioned to me as a possibility last October by my GP My diagnosis went: mentioned by gp - saw a neurologist who gave me a check over and lots of questions etc - mri scan - another neurologist appointment to show me scans and say I had lesions on brain and one big one on spine - optic neuritis eye test - a phone call to say results - appointment where it was confirmed I had MS There was obviously a few weeks between each, while thing took about 10 months. I kind of knew after getting eye test results I was going to be diagnosed as it confirmed a painful eye I’d had previous summer had come from damaged nerves, so would be counted as my second attack, and I think they look for 2 confirmed attacks to confirm diagnosis along with mri scan results etc. Hope this makes sense I’m typing on my phone with a sleeping toddler on me lol. I hope you get results soon it’s awful being stuck in limbo waiting to find out isn’t it

I ended up in hospital in July with suspected stroke and had lots of tests done plus a terrible lumber pucture (not nice) and I was told after a week of tests that i had MS. I was shocked upset, and just didn’t have a clue what it was all about. I had feelings of pins and needles, headaches, uneasy footing, ect ect. Now after a couple of months im still numb down one side and I feel so useless and I’m tired all the time. I worry about my partner leaving me, how I am coping, with covid not seeing anyone, I’m very depressed now and just don’t seem to enjoy anything anymore. Is this normal?

Hi Diane, you`ve tagged onto an old post sweetheart.

You`ll get more replies if you start a new post.

It was a shock for you, the way you got your diagnosis.

Sounds like depression has got you. Why not have a word with your GP? You could do this with a telephone appointment.

Most people have time to think about MS and find some info about or support groups.

You`ll find friends here, with great advice and a kind listening ear.

Take care.

Boudsxx