About 2 months ago I had numbness/ altered sensation from the waist down, it lasted about a week and then went away; I thought it was because I was wearing new shoes… About a week later it came back, my partner was threatening to take me to A & E ( I’m a well known doctor avoider) I called my G.P and couldn’t get an app til a few days later so I called NHS helpline, who sent an ambulance, so I landed myself in hospital!
I was there for 5 days, had an MRI of both brain and spine, a lumbar puncture and a course of steroids. The MRI showed lesions on my brain, there was no change of symptoms really and I was discharged. Over the coming weeks the symptoms did lesson.
Last week a whole host of new symptoms arose, tight chest, arm, shoulder and neck pains, muscle spasms… Just to name a few. (Mainly upper body this time) I went to the GP who just called my neurologist, I got an app to see the neurologist the next day who told me ‘I probably have MS’ The results of the lumbar puncture came through which indicate this, and I have since had another MRI with contrast, still awaiting those results. I left work last week due to symptoms, I was off until today, which I went in and only lasted an hour.
In all honesty I am struggling, to be told I probably have MS at age 25 but don’t have a full diagnosis, and strangely the fact that everything is happening so quickly. When I was in hospital the first time they told me there was a possibility of MS but it was unlikely, they just has to mention it as in the future it may/ may not happen, but MS can take years to diagnose and be very difficult to. Then to see the neurologist barely a month later to be told I ‘probably’ have MS. It’s an awful lot to process and emotionally very difficult. I think a lot of this is the ‘probably’ MS is a daunting diagnosis and just to have ‘probably’ hanging around and not knowing one way or another…
Current status, awaiting ‘definitely’…
Very long I know, your views/ oppinions would be greatly appreciated.