I’m new to the forum but have been on this journey for about 18 months now. In May 2018 I was diagnosed with optic neuritis, and despite it being quite severe I refused treatment (steroids scream horror stories to me but I’ve never had experience with them). I was already under a neurologist for another health condition, but I was referred for MS investigations following the ON. I had been having sensory symptoms for a number of years, but they had never been problematic so they were brushed off, till I had MRI’s, lumbar puncture and EP tests following the ON diagnosis, and they decided I could be at risk of developing MS.
In the last 6 months, my mobility has rapidly declined. I had a spout of falling down stairs and in the street for 2 consecutive weeks, and struggled with walking after this 2 week period. My GP was in regular contact with my neurologist about my development but I didn’t hear back from my neurologist for a while, despite him telling my GP he was 90% certain I had MS.
I got a letter asking me to go and see my neurologist (this week), which I initially thought would be for a follow-up MRI, but there were no scan details on the letter, just a clinic appointment. After my GP showing me the communication between himself and my neurologist, and the last conversation I had with my neurologist, I have a pretty strong feeling I am on the verge of being diagnosed, and that this appointment may well be that conversation. However, I have no idea what to expect and feeling completely lost and in the dark with what’s going on.
Can anyone share their diagnosis story with me (i.e. how you were diagnosed - letter/face to face, and what happened within and after the conversation)? I would be really grateful for any insight and advice.