Who is prescribing the pregabalin for neuropathic pain, if MS “doesn’t hurt”?
Is your neuro prescribing, despite not believing pain is an issue? If so, that makes absolutely no sense. Why would she prescribe pain relief for pain she does not accept occurs?
Or is it simply the case that your GP prescribed it, and your neuro has gone along with it, rather than risk outright confrontation with your doctor?
Otherwise, I simply can’t understand why she is rubber-stamping pain relief for a pain she doesn’t acknowledge exists!
I think I would definitely have had words if a doctor had told me to my face that MS doesn’t hurt. Not that I’m suggesting that’s the right way to go about things, but I wouldn’t have been able to contain myself.
I haven’t done a scientific survey, but I get the impression the vast majority here are on pain relief of some kind.
Why, if MS doesn’t hurt? Are we just a bunch of whingers, and the Medical Profession prescribes pain relief to humour us? Unlikely!
I don’t understand the comment at all.
I do understand there may be little or nothing left to try. Unfortunately, despite the oft-repeated mantra that nobody need live in pain these days, ultimately, not all pain is fixable - or at least, not without side effects that, in their way, are as troublesome as the pain.
I get permanent pain from my MS, but it’s nearly all cramp/muscular, and hardly any of it neuropathic.
Hence I take NO neuropathic painkillers (tried gabapentin once, just in case, and it made me quite giggly and silly, but otherwise did nothing). I take conventional painkillers (lots) and muscle relaxants (Baclofen and Diazepam). Oh, and quinine for cramps.
I wonder if you’ve ever tried “ordinary” painkillers, just in case your pain isn’t neuropathic? Not all MS pain is.
In general, although my neurologists (two main ones so far) have been good, I have found them quite weak on pain. I would say it is my single biggest symptom (either that or fatigue, it’s hard to choose), but neither has ever appeared in my notes, even though I’m sure I mention them every time.
If I ever need to make a benefits claim, I’ll have an uphill struggle, because there’s nothing on record to suggest I’ve ever had pain or fatigue - indeed, nothing to suggest I’m not doing fantastically!
Because my pain is not textbook neurological pain, it’s often dismissed as: “Well, that wouldn’t be MS!”
I find it simply inconceivable that I have all this pain, yet it has nothing to do with the only serious thing I’ve ever been diagnosed with! Does that mean I have something unrelated that is causing it all? I don’t think so, as I was tested for pretty much everything in the course of my MS diagnosis anyway, and everything else was clean as a whistle. So in my opinion, it’s pretty unlikely I have some mystery, pain-causing condition, that’s unrelated to my MS.
It used to be a very widely held belief that MS was painless, and there are almost certainly a few elderly neuros still practising who were taught that at medical school, and have never quite managed to “unlearn” it.
But is your neuro elderly? If she qualified in relatively recent times, there seems no excuse for believing MS to be painless.