Hello everyone :-), Can I ask what experiences everyone has with pain ? I for instance am in a great deal of pain everyday and have encountered some doctors, A&E Doctors who still believe MS isn’t painful. Krissy
I have pain everyday My neuro said the signals are all muddled like faulty wiring. She said to my dad. If someone leans against you your brain tells you someone’s leaning against you. But if someone leans against Emma (me) then her body says get off. It’s the bodies way of trying to protect her. It doesn’t help me any but that’s what she explained to dad. I personally think the weakness puts extra pressure on our joints. Do you take any meds? I’m sick of pain too
I think in another post (dodgy memory) someone said half of people get lots of pain and other half have none Or something along that lines though don’t quite me lol Em x
Hi Em, My neuro isn’t big on explaining things really, it’s great to hear that yours is more eager. I would definitely agree that we prob do habe more pressure on our joints. My constant pain is nerve pain in my right arm hand and fingers, my left hand and right thigh and it is absolutely constant. It really wears me down mire than the actually disability. I take Gabapentin 900mgs, Amytriptiline 50mgs, Tramadol 300mgs Krissy x
I’m 600 pregabilin 60 baclofen and 40 Amitripiline amd cocodomal Do u find the tramdol helps at all x
I really like my neuro think I’m very lucky
I really should wait before I push send lol The pain question came about because my dad said to her after reading up on ms there doesn’t seen to be much on pain why is she so sore that’s when she gave the answer I said above
I think when the pain gets the better of me the Tramadol makes my heas light so I dont care about the pain rather than taking it away. Im bad with those kind of painkillers as im allergic to codiene so am quite limited. What do you think of Gabapentin ? Its been a godsend to me. I like my neuro and chose him because it ms and mri reading (sorry brain froze couldn’t think of the word so put reading lol) are his speciality and he’s really thorough just not very verbal ha ha Krissy x
I was in sooo much pain when I first got ill I didn’t know what to do with myself. My left hand had gone all claw like and nothing would touch the agony. I was put on gabapentin and Tramadol and it barely took the edge off the pain. Fortunately this has calmed down now and I just get normal nerve pain in my hands, toes and ears. I am still on gabapentin to help with this. I also stiffen up in the evenings so my muscles and hips ache.
Interesting what you say about hospital doctors not believing MS causes pain. When I was in hospital, the nurses used to withhold the painkillers the doctors had prescribed from me!
I had severe nerve pain (throughout left arm, just below ribcage on left, last two fingers of left hand) several times per day, every day for almost three years.
Tried 16 different medications and visited ‘pain clinic’ all to no avail.
I was eventually told - by an FES clinician of all the medical people I see - of an Ebook (produced by an Australian group) called ‘Explain Pain’. By the time I read this, no intervention had worked, so I felt I had nothing to lose by just trying to help myself.
Well, after a couple of months the pain is almost gone - just get mild pain once every few days. A huge improvement so the FES clinician was brilliant, especially considering pain only came up in casual conversation while we were checking on other stuff !!
Dom
(ps: FES = Functional Electrical Stimulation: To combat drop foot and improve walking - Nothing to do with pain !!)
Morning all,until now I just thought some of these pains I get we’re pulled muscles…but it’s really hard for me to explain but I’ll have a go… On Tuesday evening I started getting a pain in my left arm just above my elbow,so I thinks ‘oh pulled another muscle’ but what has happened now is that pain has left that arm and is now in my right arm but more severe…I know I’ve not pulled a muscle and the pain is excruciating more like a dead arm and I can hardly move it now,but this is a fairly regular occurance for me and only now I’ve started to think it could be related… Do any of you’s have anything like this?? I’m seeing my Neuro on Monday,do ya think I should tell him or do you think he’ll laugh at me lol…sorry but this all still a bit new to me and not always sure what is and what’s not symptoms… Not been dx yet,but see my Neuro Monday like I said and maybe be more in the know…got 3 lesions on my brain and going to find the results from the spine MRI and EEG/EMG scans I’ve had recently…fingers crossed… Fletch x
Puddinglover that was exactly what happened to me, it came out off nowhere amd the pain was unbelievable. Krissy x
Puddinglover that was exactly what happened to me, it came out off nowhere amd the pain was unbelievable. Krissy x
Hi Krissy
ive been in near constant pain for 14yrs and i take zapain & diazepam and inbrophen & pramipexole , i tried amitrypline , tramadol & baclofen which never made any difference i guess ive kinda got used to it but i have a very high pain hreshold so that probably makes a difference it affects my arms legs neck shoulders chest , im awaiting an appt for the pain clinic.
hope yours eases off very soon respect sheep
Hi I used to be able to say that I had no pain but now it is always there with the only difference being how much. It once felt like stiff muscles which made sense as I have tight muscles and relaxing drugs helped. Now though I need relaxing drugs to let me walk and nerve blockers to reduce pain signals and a sleep tablet to let me get through the night undisturbed. Exercise can reduce and increase the pain so I try to get just the right amount… So yes, ms does have pain in muscles, joints and nerves in my experience. Now I say I do have some pain but I can cope with it. Andy