Hi, does anyone else get this?
I think its abit cold and my arm feels the most cold of all the rest of body is okay but my right arm which sometimes gets stiff ( mild spasicty?) feel sooo cold.
Does anyone else have a cold limb? And how do you deal with it?
Yes, I have a cold right foot/lower leg - I saw my GP about it - Iād recommend checking with your doctor or MS nurse too. A doppler test is what I asked about (they rule out thrombosis from that test), he checked my pulses in foot and ankle and theyāre fine - based on the fact it took me a couple of months to get it looked at, he said it appeared to be nerve damage but was happy to send me for test if I wanted it.
I make sure to ātouch testā - and put socks on whether I noticed it was getting cold or not
That really is it, I wouldnāt dip my toes of my right foot in the water to test the temperature! I wear pjās at night, the one time I tried to sleep bare legged, it took me quite a while to ignore it
The other odd thing is that itās my right leg, thatāll feel like itās burning as soon as it gets to a normal warmish temp.
Sonia x
I meant to say, it took me a while to get to the doctor, as I really thought I was imagining it - Ididnāt book til my husband had checked it on a couple of occasions, to be sure
Sonia x
Hi Cosine,
Are you sure itās cold, and not numb/reduced sensation?
i.e. if you touch it with the good hand, or somebody else touches it, does it feel a normal temperature?
The brain tries to make the best sense it can of the information itās given. As it does not expect your arm to be numb for no reason, and it knows cold can cause numbness, it may reason: āAha, the arm must be cold!ā
Itās very hard to counter this powerful illusion, because the brain thinks: āI must be coldā is a much more sensible explanation than: āIāve randomly lost sensation in bits of meā - and, in healthy people, it would be right!
Some people find wearing tight clothing on the affected limb makes it feel more normal, because it gives the brain a reason sensation is altered (something tight is on it), rather than having to assume it must be cold.
The brain is both incredibly clever, yet incredibly easy to deceive, in some ways. If you can give it a perfectly good reason why itās feeling what itās feeling, e.g: āThereās a tight thing on my armā, it will be much less concerned about it, because what itās feeling makes sense in the light of known information.
Tina
I get it too on my right side (arm and leg). As well as it getting cold, the skin changes colour to a purplish red!! Does anybody else have this?
Yes, I get it with the right hand too but I didnāt want to overcomplicate things! The cold foot goes very red, itās a good reminder It is very strange as itās such an obvious difference and yet you donāt feel cold obviously.
Sonia x
For me, itās my left hand that feels a bit numb/skin too tight but my right foot/hand (and possibly part of my gums) thatās cold. Great how MS does that
Sonia x
Often my legs feel wet or cold but when I touch them they are normal, very strange
OMG my left body is numb and right hand is cold lol!
MS is funny! Honestly ive been getting so many new strange symptoms these past two months and I havent even got a diagnosis yet. But after a 2 month wait ! seeing the neurologist in two weeks. Boy have I got stuff to tell him!
My cold arm also feels tight and sometimes it gets to the point that i cant write.
Thank you for your informative reply that is very interesting!.
My brain is ok with left arm being numb but not right, now that you mention it i think there reduced sensation on the right.
The numbness on the left seems much less now!
My knees used to be cold when my relapse first started. Now they are hot & quietly fizzing away & when I get up and move around a bit I get a rush of sensations like a wave washing over me! I started on 10mg amtryptaline a day last week & have now upped the dose (docs recommendation) to 20mg each day. Hope your feelings improve soon x Sallum
Thank you for your replies everyone, it is really reassuring when others describe similar problems.
Iāve had all kinds of weird sensations :tightness , buzzing , burning , stabbing . When I sneeze my body buzzes v odd.
the best way i can describe ms symptoms is that hippies used to buy drugs to give them similar weirdness.
so just say that youāre tripping man!