Has anyone had tightness in their buttock muscles without any tightness in lower leg muscles? It’s worse when sitting down. Standing up is easier: not the standing from sitting because that’s quite painful as is getting out of bed in the morning from laying down. I’ve had tightness in lower legs before but never this high before without other muscles being affected. I do have numbness in my feet which is almost continuous nowadays. It’s been there so long now I’ve just gotten used to it. Left foot more affected which is the same as the tightness in my buttock. I have been taken baclofen but it’s not really helpful so I stopped taking it. Baclofen has worked before.
Hi freshairman, back in February I started to suffer from tightness in my buttocks, which then spread to my thighs then my knee’s , then it started in my calves. I was seen by neuro physio who gave me stretching exercises to do, to no avail. I was seen in the tone clinic, but they said I had to many areas for Botox, so it may well help you? It was recommended to me to try gabapentin with baclofen, I was started on gabapentin at a low dose which was built up. It’s a fine line as a to higher dose messes with my gut, and bladder function.
So it may be worth a try to ease your symptoms. I hope this helps you.
Thanks animali. I’ve got an appointment with my ms nurse coming up, also supposed to be getting an appointment with my neurologist too. My GP wrote to her recently as I had a MRI scan three months ago, this week! Apparently she still hasn’t got the results back; my neurologist that is. I’ll bring up the botox when I see the nurse and neurologist. Am I right in thinking that before botox is offered, you have had to try three different types of muscle relaxants first of all to see if they help relieve symptoms?
I hope your appointment goes well for you with the ms nurses. I do believe certain areas of the uk there’s a delay in finding out the results and in some cases these get lost. I enquired when I was seen at the tone clinic, but I was told I had too many areas for Botox as it would cause too much weakness for me to be able to walk. It was suggested, as I’m allergic to a lot of the medication, or they make me tachycardic. But it’s worth an ask. Have you tried any medication, or stretches to ease your symptoms, or you could try a massage in the mean time, I know sometimes the relief is short lived, but any form of relief is worth a try. I hope you don’t have to wait too long for some relief.
Yes, thanks animali. Nurse appointment is in about a months time. So I’ve tried Baclofen which I’ve used on occasions before although unfortunately it’s not working this time. At the moment I’m on Methocarbamol. Another muscle relaxant. Been on it for a little over a week and although it’s not instantaneous it does appear to be having some affect.. very slight affect anyway. It’s still tight when I’m sitting down and it does get fairly uncomfortable if I drive too far.. been sticking to short journeys at the moment. I’ve been prescribed a months worth so three more weeks approximately left. Then in a little over a week after that course has finished I’ll be seeing my nurse. I have tried contacting a place that does complimentary therapies for MS although unfortunately they haven’t replied. I can’t find a phone number and they don’t have an email address I can write too either. It’s one of those online forms that you have to fill in with the nature of your enquiry and contact details but unfortunately I’ve heard nothing and I’ve tried several times. There’s no way of knowing if they’ve seen the forms..if it’s even still there. Or there just so overwhelmed with people that they haven’t got the time to respond to new enquiries. Maybe it’s another thing to ask my nurse if she knows if and where I might be able to get a leg massage.
You’re very welcome, I hope the muscle relaxer eases your pain. But a month isn’t a long enough course, I’ve been taking them since March to take the edge off the pain. I usually get a massage once a month in my area, she specialises in different types of treatments. She’ll work on my problem areas at the time of my appointment. This doesn’t get rid of the spasticity m but gives some Redford a period of time. It’s important to do some stretching too, as it’ll stop the muscles from shortening which causes more pain. A physio can assist with this. Sometimes the process of accessing assistance can be quite frustrating at times.
No, a month isn’t at long time at all animali. Upto now.. fairly recently anyway, I’ve been fortunate in my symptoms and relapses and have only taken medication on two other occasions. Baclofen both times which has always helped and it’s always just been a course of 28 days..84 tablets.. until this time and they haven’t worked. Maybe time and age is catching up with me. Or something else has changed..more lesions and in the wrong place. I don’t know yet. Chased my GP again today regarding the last scan results, because it’s 3 months exactly tomorrow when I had it. I’ve never had that kind of wait before. It just seems an extrodinate amount of time. At least to me. Had the scan on the 1st July.
Yes you’ve been very fortunate, which is a positive for you. My episode started in February and has continued to get worse, but I think I’m paying for all those relapses I had before I went onto a DMT!
I had an MRI in November and they lost the results, so I recently had another but this one was done at the hospital I’m under so fingers crossed I’ll get the results, but 3 months is a long time, but some hospitals are behind with this part of the procedure. Have you checked on the NHS app? Or you could phone your neurologist secretary to see if they’ve heard anything regarding the results. It can be very frustrating at times, especially when all you want is answers on how things are looking. I hope you hear something ery soon.
Both a nurse practitioner at my GP surgery and my own GP have emailed the neurologist. Apparently she’s still waiting for the results. Maybe it is just the way it is now animali, although I hope not because that makes me sad, if that’s the case. Perhaps like you, my scan results have gone missing, for whatever reason. That’ll be bad enough, but hopefully she’ll request another scan, if that is the case, though. Anyway, I’ll see one way or another, eventually. Thanks for your suggestions regarding massages and the Botox though. Something to ask my ms nurse when I see her shortly. Wishing all the best to you too, animali.
All you can do is keep asking, like I said the time scale for results can vary from each hospital. Some have longer waiting times, which is unfortunate because it doesn’t help us from worrying especially when you’re dealing with changing symptoms. Try and remain positive as that’s better for your wellbeing, too much negativity can have a detrimental impact on your symptoms. You’re very welcome and hope you get some answers and find some relief.
Thank you freshairman