Hi everyone, So I am seeing the ms specialist tomorrow for the first time since dx in Feb. I have already tried and failed with Rebif, so will be discussing other DMD treatments with him. I have made my list of symptoms and am trying to keep an open mind, not assuming he will be the same as the two other (poor) neuro’s I have seen thus far, both of which were very dismissive of me. I am feeling really anxious about it all, feel Ike I’m going to forget something or breakdown in his office! Also having to go without hubby’s support as he has to work. I don’t know what I’m asking for really, maybe just some reassurance that it will be ok?! Thanks, sorry for the pathetic ness Lx
i hope your appointment went well.
its a bit late for this but the specialist neuro is very focussed so try to be concise when talking about your symptoms.
he/she will be far from dismissive and will probably concentrate on getting you on another dmd.
you will be fine, stop worrying and make the most of your appointment
Thanks Carole, sound advice as always. X
Sorry - you know about my goldfish memory! I take it from what you’re saying that the previous two probably weren’t MS specialists? If that’s the case, finally seeing the right bod may make all the difference.
I know you are diagnosed now, so the parallel doesn’t quite hold, but when I was on the road to diagnosis, and saw an MS specialist for the first time (having seen a succession of physios, chiropractors, rheumatologists and a neurosurgeon prior to that!), the difference was amazing!
Although I had - up to that point - never, ever suspected I had MS, I’d never left feeling fully convinced or reassured by any of the others. I was left feeling that although they might have a point, they hadn’t really got to the nub of things. As soon as I saw the MS guy, I really felt we were finally getting somewhere, and that he wasn’t just fishing around in the dark like the rest. I intuitively felt: “Yes, I’m seeing the right person at last! I’m sure he’s onto something!”
So hopefully, you will have a similar experience when you see the right person. I really can’t understand neuros being dismissive once you’ve had a confirmed diagnosis - it’s not as if you can be making “a fuss about nothing” by that point, is it?
I am always nervous of neuro appointments, even though I’ve never had what could really be termed a “bad” experience. It’s something about just being at the hospital. And even that, I don’t fully understand, because it’s not as if I’m in denial or anything - I’m regularly here talking about MS, so it’s not that I’m pretending I don’t have it. Just a bit phobic about hospitals.
I don’t think anxiety is that uncommon, to be honest - who really, honestly WANTS to go to hospital, even if it’s just for a routine chit-chat about how you are? I comfort myself by thinking ahead to when it will all be over, and I won’t have to go again for another six months! Just tell yourself that by tomorrow teatime, it will be history.
Thank you Tina. Yes it will be the first time with a specialist, first neuro was a locum and second a general neuro. Hopefully you’re right and he will be in a different league. I don’t understand the anxiety really, not like he’s going to tell me off or tell me anything I don’t already know! Yes this time tomorrow it will be over for better or worse, will get some cake in to celebrate! Lx