Hi all Had my appointment through to see the ms nurse. Jan 23rd. Trouble is…my pins and needles in my hands and feet are horrendous. I feel like my feet are going to explode. I can’t stay awake even though I sleep at night! My need to wee is uncontrollable! etc etc blah blah blah…I could go on. My GP gives me very little support and doesn’t seem to know a lot about MS. Any help/advice would be grateful. Julie xx
cannabis
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Hi Julie,
I would advise you to phone the MS nurses secretary. You might need to explain how horrendous your symptoms are - but don’t worry they will have heard it all before. Explain that you really need your appointment brought forward.
Also perhaps someone here could advise you on medication to ask your GP for.
need to wee uncontrollable - have you been tested for UTI - nurse at surgery could dip your wee.
Hope you get sorted.
hugs
min xx
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hi julie
my first ms nurse appointment when i unloaded my catalogue of woe led to me being referred to occupational therapy, physiotherapy and the bowel and bladder clinic.
your gp could refer you to the bowel and bladder clinic or you can self refer
just google where your nearest one is and give them a ring.
amitriptyline helps with the pins and needles/numbness in hands and feet so ask your doctor to prescribe this.
when you do see your ms nurse, ask about OT and physio.
the occupational therapist walked me through my house asking where i felt unsafe.
then arranged for grab rails to be fitted in my bath and shower, which i am grateful for every day 8 years on.
the bladder nurse (formerly known as continence nurse) is brilliant.
they scan your bladder (like a pregnancy scan) and it lets them know if you are retaining urine.
i was retaining massive amounts so no wonder i was having problems.
there are several medications to help you with this.
there is a light at the end of this tunnel and you’re not too far from seeing it all.
carole x
Carole you are so kind affording me so much of your time. I will ask my GP xx
In what form? x
in its natural plant matter / resinous extract form:
added to a cup of tea is simple and easily measured.
failing that and if you fancy, a nebuliser or vaporiser…
of course if you are already a smoker, the usual ‘reefer’ / ‘spliff’ method is typical… but this isn’t very good for you and is highly wasteful of the medicinal element.
otherwise can you source synthetic or extracted CBD derivatives from a pharmacy perhaps?
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hi again julie
when i first went to my gp about the pins and needles, i saw a locum doctor who prescribed thiamin tablets.
after a few weeks the pins and needles stopped for 6 months before returning for good.
thiamin is one of thr B vitamins (B10) so take a good B complex and this should help.
carole x
Hi sorry it’s horrid but sounds very familiar … I am exactly same at minute… I am prescribed amitrypline to cope with nerve pain/ sensations . I can up it when things are worse and whilst it doesn’t get rid of it it takes the edge off . My neurologist has referred me to bladder clinic but in meantime advised no caffeine and don’t drink within 2 hrs of going to bed… mine is triggered by stress and over doing it … had a tough week my husband was diagnosed with cancer last Friday and my neurologist finally diagnosed my MS on Monday after new lesions showing … after 10 yrs in limboland ! Depending on how well you cope with heat I find a bath relaxes me but have to wait for water to cool down before getting out otherwise I resemble bambi
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Julie,
There is a lot to be gained by pushing to see someone - the process of “doing something” rather than sitting and suffering whilst waiting. If you can speak with someone I find that the process of sharing with someone who listens and will try to help is useful in itself.
I hope you feel better soon
Mick
Hi all Thank you for all your kind advice. I do read and try to make notes of everything suggested. Julie xx