Hey, I feel like a walking disaster zone at the moment and I’m wondering if I’m making symptoms worse by keeping it all bottled up. It started with severe MS Hug symptoms and has just escalated from there. I’m still having the tight pain around my chest but I think I e accepted it however this week I’ve had altered sensations in my hands making writing difficult even and then today I woke up with pins and needles in my left side of face and no taste on that side
I got little or no support from Gp or MS nurse over the hug issue even tho I’ve been several times in tears and now I don’t want to go back with these new symptoms (if that’s indeed what they are?) I feel like a whinging attention seeker to them but although my symptoms are not disabling they are horrible and threatening to spoil our family Christmas. Anyone experienced similar symptoms? Any advice for self help, all the MS nurse could offer was an app with my neuro in March !
Oh Lucy…poor you. sometimes it seems those we turn to for help and advice just make us feel worse!
So you have a good vent on here and we’ll all try to boost you up chuck!
Pins and needles are horrible! I usually get them when in one position too long, so all I can offer is to shift if you can…not always that easy, I know!
when i get the hug i find taking a diazepam a big help also try lying down and put your arms up behind your head and do breathing exercises for anxiety that helps too,ask your dr for some diazepam to take one when it gets too bad,they dont like giving them though my dr prescribes 10 at a time for just this reason.
Thank you, my MS nurse says they don’t really give steroids for sensory relapse unless it’s affecting your work or stopping you doing things and my GP doesn’t like to give me anything as he likes to run it past the neuros first. I think I may just have to ride it out I guess hopefully it’ll pass quick x
Sounds like you are going nowhere fast. March is a long way ahead
GP is not the person to see with a problem like MS, they really do not have the specialised knowledge. You do not seem to have a lot of faith in your MS Nurse either.
I honestly believe the person to see is an MS consultant. Do you still see the person who diagnosed you? Do you see a consultant on a regular basis? They are the people who can help you. If you do not get on with your current consultant then go back to your GP and ask for a new referral.
Maybe you can get a cancellation with your current consultant or say that you are an emergency. Maybe phone up the secretary of the consultant IGoogle name and hospital) and see if you can be squeezed into an extra appointment.
