I am looking for advice and support about the MS Hug.
My husband has RRMS and his condition has been pretty stable for years ever since he was diagnosed some 20 yrs ago (long time before we met). About 2 months ago, he woke at 4am with extreme pain round his chest, said it was a feeling of being squeezed very tightly or crushed, made his breathing difficult and he was convinced he was having a heart-attack. Asked me to call an ambulance, which I did. After they did a heart trace in our bedroom, they said it was not his heart and suggested we went to A&E. A&E consultant advised referral for access to Rapid Assess Chest Pain Clinic, referral to MS Consultant & MS Nurse etc. Going through the process for all this right now (have an appointment in 1.5 weeks), but GP says we have to do the RACPC first before she can refer to MS Consultant.
Husband has now been suffering from this MS Hug for 8 weeks, having been told to wait for 6 weeks to see if it goes away (if it was a muscular thing). He is almost at his wits end with it. He is exhausted from lack of sleep, and has no energy to do anything. Nothing seems to help - co-codamol/ibuprofen - it seems worse if he is lying down or sitting. Seems to be easier when he is walking around and upright. He is very tired and down, as a result.
If this is an MS Hug (which is our belief, having Googled it as the GP seems to want to focus on other possibilities at the moment, including gastric reflux) please could anyone help me with the following questions:
He is still working full-time and ideally wants to continue to do so for as long as he can. He is 55.
Any suggestions or advice would be very welcome. I feel quite helpless and don’t know how to help him, other than go and get more pills each time. There must be something better?
Thank you for you time.