Hi fellow MS’s, I hope you are doing as well as can be expected. I expect you are like me and are much better now that it’s cooled down a bit.
From speaking with friends in my local branch there seem to be only 2 (including me) who suffer with this very painful condition. At a recent meeting people looked at me with blank faces and even thought the phrase quirky and funny.
Now I know from communicating with people on this board that there are many others who have experience of this.
It does seem strange that there are so few as I always thought it was a common symptom. Most of my friends are not new to MS, I belive someone told me it’s source is a spinal rather than brain lesion, don’t know if this is the case.
Thank you for any replies.