MS, not sure?!

Hi All,

Wondering if anyone could offer up some advice.

I, as of about 5 months ago, had some kind of attack to the body. Quite literally went about my business as per usual then a minute later it was like the life has drained from me. I was suddenly weak (all over), very dizzy (I was spinning, not the room), could not stop going to the loo (to pee) and felt like my heart was about to break of my chest, alongside a very sweaty body. This attack lasted a few hours, I eventually just drifted off to sleep and woke up feeling about 60% better (still a bit wobbly and worrisome). Basically, ever since this day I have gone from feeling 100% healthy to less than (some days I feel great, others I experience dizzy spells and some weakness) it’s very on and off. I just recently had another one of these ‘attacks’ although not as sever as the first one (again struck in the middle of the day) ended up in a&e, had bloods taken all normal, given fluids and left feeling quite ok. I went straight to the doc who ordered an MRI, I’ve just recently had that done, no official results yet but a did get a do not worry from the radiologist.

No one has mentioned MS to me at all, but of course I’ve gone ahead and googled it myself and come to that conclusion. Just wondering if anyone has had a similar situation or symptoms??

Anyone has any other suggestions as to what may be happening?

hi elodie

it is a very long and winding road to diagnosis of ms.

your gp is right to ask for an mri.

depending on what it shows, the neurologist may suspect ms or something similar.

there are many other diseases that mimic the symptoms of ms like lymes disease.

you could be offered a lumbar puncture and will probably have other tests done.

please leave that quack google alone.

be patient and wait for the results of the mri.

and don’t get stressed because this makes everything worse.

carole x

The problem is that 100 people might have the identical symptoms but for 100 different reasons - some minor some serious.

What is your next stage doctor-wise? Are the final MRI results going to your GP or are you going to a consultant at the hospital? If so, what department?

Hi Elodie

To be honest, to an amateur like me, it sounds like there’s something neurological wrong, but not necessarily MS. An MS relapse generally lasts longer than your attacks. See the MS Society description of an MS relapse: https://www.mssociety.org.uk/what-is-ms/types-of-ms/relapsing-remitting-rrms They suggest that an MS relapse lasts 24 hours or more, but what you’ve described lasts for less time than that (unless I’m reading your post wrong in which case I apologise).

But obviously, neither you nor I can diagnose MS or rule out MS based on what we read on the internet. As Carole said, leave Google alone. He’s just not a very good doctor.

What you really need it seems, is a referral to a neurologist. Regardless of the results of your MRI, it does sound like you have something wrong that needs specialist help.

Hopefully you will soon get just that.

Sue

I am not a medical expert either (certainly not!) but from my personal experience and those I have been told by family and friends whilst these symptoms COULD be neurological (hence the MRI) but it could also things including diabetes, cardiac issues, Obstruction to oxygen supply to the blood, spinal degradation putting pressure on the spinal cord, fibromyalgia etc etc etc. Equally, you could poll 100 people with MS and not find a symptom match then poll another 100 and get lots of matches.

Good point.

And, of course, Dr Google is a terrible doctor. Not only is he a complete scaremongering chunkmunch who would diagnose leprosy from a cut finger but he is INCONSISTENT with it. You and I might Google the same symptoms but because we might phrase our search terms slightly differently we can end up with wildly different answers.

Thanks everyone.

I know you’re all completly right, it’s just being in this limbo when you’re feeling so terrible is just a nightmare, you look for answers anywhere.

I did actually get a copy of the MRI images to take home. Did have a close look at them but of course I am no doctor, although nothing jumped out at me, I still have no idea what I’m looking at.

Haven’t heard anythig back from the doc, though I assume they already have the results. Will make an appointment for next week. Although I did assume they would call me once they got them.

Honestly, the worst part is if it comes back normal and I’m left in the dark with constant symptoms and no treatment.

Thanks so much to everyone who replied!