What are people’s experiences with the MS hug? I’ve read up about it and read a few accounts. But I just want to hear more.
For me I have to stop what I’m doing and go to bed… even though it doesn’t really help I just feel too dizzy/exhausted to be sitting up
I’ve experienced the hug only 3-4 times I think and the last one was years ago. Very much like a slightly uncomfortable hug. Don’t think I had to go to bed
Thank you for your reply! What did it feel like to you?
An uncomfortable tight hug around my upper abdomen plus feeling tired/‘fatigued’. Lasted maybe 12 hours or so
Do you have any idea why it comes on?
Absolutely no idea. Just one of the weird things about MS. I guess that at that particular time the relevant parts of my brain, spinal cord was a bit inflamed