Sorry in advance if this is a brain fog ramble, but hoping I can get some pointers.
Been suffering since December with faints when I’m standing, walking or sitting up.
Been to drs who have ruled out issues with blood pressure, heart rate, migraines, thyroid, diabetes, inner ear infection, periods etc. They then said it may be something called Neurocardiogenic syncope and referred me back to MS consultant. Dr also said the consultant would probably request MRI and a tilt table test.
Saw my consultant last week and he’s said he doesn’t think it’s MS causing my faints, but that it’s functional and maybe migraine related? He also said that he doubts Gilenya would cause heart issues, but then said maybe it’ll could do, so is switching me to tecfidera, but gave me no information on how I’ll get started on new meds? Also he didn’t think MRI was necessary and said tilt table test not down to him?
I guess I didn’t come out feeling great about everything, as nothing seems much clearer from that visit and he was in a rush for me to get out his clinic ‘as he had patients waiting 2 hours to see him’ (I also waited this time to see him). He was very rushed in giving information and kept referring to it as a minor issue, despite not being able to work or function to my normal ability.
Has anyone experienced similar symptoms of fainting when moving around? Also any advice on not getting on with your consultant? I realise they aren’t meant to be a best friend or anything, but after seeing him last week, I felt like I was back in limbo after diagnosis 5 years ago.
Any advice or tips on how I can get better or get most out of drs visits etc greatly appreciated