I haven’t been around for some time as I have been symptom free generally bar a few numb bits. I was diagnosed with RRMS over 2 years ago and double vision was my main problem when I relapsed that time and led to my diagnosis.
I had (am having) another relapse now and this time I am having the dreaded MS hug on one side around my ribs and up to my neck and numbness/pins & needles all down my left side. I luckily had my annual review with the MS doc a few days ago and so she has ordered a new MRI and I had some bloods done.
My main concern at the moment is work. How in gods name does anyone work when they are having a mobility related relapse. I was able to carry on as normal pretty much when my eyes were bad as they were corrected by the orthoptist with prisms. It took about 7 months for that to get back to some sort of normal.
What do you all do if you can’t work? How does your employer react to taking time off eratically and then not knowing when you will be fit enough to work again?
I feel if I can get this muscle tightness relieved I can probably cope with the pins & needles in my work. I have been prescribed baclofen for the ‘hug’ and I am due to start taking it tonight. My legs feel wobbly and i’m walking unbalanced as I can’t feel my feet properly so probably shouldn’t be driving but as I am on my own during the week (hubby works away) I really don’t have much choice with 2 young kids to see to.
I know I am only a week into this particular relapse and it could be much worse, but I am having a day of doom and gloom and thinking all the worst scenarios that could be.
Any wise words would be appreciated.