It’s probably best if you remain anonymous for this one if you respond. Call me “H” for now
I was diagnosed with MS in 2007 and not worked since then; I’ve been living off the good nature off family members (Mum & Dad mainly) and DLA soon to be PIP (that was a nightmare test). My parents should have retired years ago and they are just about to by the end of the year, and also moving house where I also live, it’s been really not fair on them. I’m also going through a relapse right now I’m typing this with one eye closed on word on what I call my bad eye, keep hitting the wrong keys.
My symptoms include extremely sore foot walking is difficult, need to sit down or lean against something and let my foot float in mid-air, also have a constant extreme headache and eye pain with extreme photophobia and the odd bit of numbness the comes and goes here and there. Also have a very sore left hand and fatigue. My eyesight has been hit 4 times in the left and now 2 times on the right. I’m sure there are people worse than me but due to this relapse just now I’m feeling a bit uneasy my eyesight is not good. Waiting on the results of the MRI I had last week I just had one in April.
- So I was just wondering what type of work you do, what symptoms do you have, how do you cope?
- Is your work ok with having MS, do they know?
- I don’t think I would tell anyone when I get a job.
- Don’t mean to intrude but how much money to you earn?
- (Don’t have to answer that one) a job is a job, a means to an end and that’s it.
It has taken me 10 years to come up 3 units short on my degree, with that length of time it gets to a point you just can’t be bothered with the stress of it but I will go back after Christmas and get that magical word degree or as I call it the fake golden goose.
I’ll be 42 at the turn of the year and I’ve got no idea what to do, my mind is blank at the moment my mine is on the results of the MRI. Anyway that was a bit of a rant sorry about that if you do reply please stay anonymous if you like. My head is all over the place at the moment not sleeping well at all.
Thanks for reading and take care.