Forum

Feeling lost

Hi I’m new to this.

I was diagnosed with Relapsing Progressive MS in November 2014. Both my MS nurse and my GP say that I should not be working and the way I feel everyday with pain in the muscles with spasms, constant fatigue( wake up tired!) and constant wobble I’m just not fit to work and feel my health deteriorating rapidly. Due to a letter from my GP at the beginning of December my work sent me home. My work have been very good with me and have arranged for me to work from home with computer work. I don’t know how long this will last.

I have read through quite a few blogs and can’t see anyone with the same type of diagnosis as myself and would like to get in touch with people with the same MS type, even better if you are local to me in Angus.

hi ally

have you not been offered a DMD?

sorry but relapsing progressive is a new one to me but the fact that you have relapses could mean you are eligible.

so sorry that you are suffering so many awful symptoms.

have you got an occupational pension?

if so you could be eligible for medical retirement which will be through occupational health at your workplace.

sure more people will reply soon.

carole x

Thank you Carole,

Relapsing Progressive is a new one to me too! The neuro seems to think that I have had RRMS for quite a while but I did not realise this stage.

After being diagnosed in November, I just started on medication on the 14th of this month. I have been prescribed Extavia, an interferon beta that I inject every 2nd day. I do not feel any better on this medication but my MS nurse said that I wouldn’t.

It only slows down the relapse.

I started in my works pension scheme about a year ago. I think my work are waiting for a report from my neuro. But he doesn’t seem to be in any hurry. This was asked for just after diagnosis!

Since I’ve been blessed with MS I have found that there is no hurry for anything. I’d just like the info to get everything in place before getting pensioned off!! Especially since my good lady is due to go into hospital for a new hip in the next month or two.

Hi Ally and welcome.

I have SPMs without relapses and as I am led to believe DMD’s are not offered. I would suggest you speak to your MS nurse and doctor to see if you can get some Physio and see your Neuro to prescribe the appropriate drugs for you. Take care and push for some help.

all the best

Janet

x