Hi everyone
Just looking at the wording of an MRI report (I say “report”, it’s a single sentence, awaiting a face to face for more detailed feedback).
Let me preface this by saying I know this absolutely doesn’t sound like MS! I’m fortunate that I have a neuro who is convinced there’s an issue and seems committed to finding answers, but with no diagnosis I don’t really know what support group to join to ask questions; MS initially seemed the most likely hence why I joined, but seems less so with normal MRIs. However it’s the most active group and has the nicest people so whenever I need clarity on a neuro issue, up I pop!
So, as I said, I already know the result doesn’t indicate MS. However, my question is simply, has anyone ever been told there is “Essentially normal. No evidence of central demyelination”, but ended up being told that there’s peripheral demyelination or something (it’s a thing, I googled it, good old Dr Google)?
I’m not sure whether her specifying central means she may have spotted something minor peripherally (but tbh I don’t even know where would count as peripheral that would be seen on a brain and spine MRI so this may be a nonsensical question).
Alternatively it may just be the language they use and I’m wildly overthinking because I’m at a point where I actually want them to find something! I know when they say a test is normal you’re meant to think “oh good!”, but really when you know you’re experiencing very real symptoms with no answers I think it’s common to think more along the lines of “oh ffas, really?! How can it be normal??!!”.
So yes, that basically. Does “no evidence of central demyelination” imply there are no issues at all on MRI, or has anyone experienced this wording as meaning something less serious was noted, just not the CNS issues that were initially feared?
Hope that makes sense! Limboland is the worst and “essentially” normal is making me overthink too, I never used to be this irritating and neurotic I’m sure!
Thank you for any answers and for all your continued support, this is far and away the best neuro support I’ve found!