Sorry for starting a new thread but wasn’t sure if people were still reading the other one lol. I asked for a copy of my MRI report and it has just arrived. It is basically a sticker with the back still on papercliped to a with compliments slip. It says: clinical details: epilepsy. New symptoms of pins and needles and numbness in leg. Findings: normal intracranial appearances with no evidence of mass, haemorrhage, hydrocephalus or established large vessel infarction. Normal craniocervical junction. That’s it.
Karen’s thee kiddy for this but did you know you can ask for a DVD of the pictures of the images of your brain the MRI took. COST ABOUT £10 I think; always handy for future images comparrison.
Certainly doesnt sound like much of a report if you ask me!
Hope you get some answers soon Nikki
It almost sounds a bit like they haven’t even bothered looking for MS lesions. There’s no comment on inflammatory signs.
I would keep a copy of your MRI and go for that second opinion.
It sounds like the neuro only requested the MRI to say he’d done ity and didn’t really believe you had a problem. This will obviously influence what the scans the radilogist does and what they’re looking for. Though if there was anything obvious they should have commented. How frustrating!
Hi again Nikki
I just remembered that when I had brain MRI done (bout 3 months ago) my GP told me that it only ruled out brain tumours. Boy was I glad I didnt have one or know that that was what was suspected!
As a matter of interest a diagnosis uses the Sherlock Holmes principal; eliminate the obvious and what is left must be the answer.
So a battery of tests designed to eliminate the various differential diagnoses, some of which are more urgent or more serious than MS, others are more benign or self-limiting. Diseases like Tumour or other Cord compression, Stroke, Acute Disseminated EncephaloMyelitis (ADEM), Lyme disease, Sub-Acute Sclerosing Panencephalitis,Neurosyphilis, Progressive Multifocal Leukoencephalopathy, Systemic Lupus Erythematosus, Cerebral Arteritis, Complicated Migraine, Diabetes, Hypothyroidism, Myasthenia Gravis, Acute Transverse Myelitis, Herpes Simplex Encephalitis, Polyarteritis nodosa, Sjogren syndrome, Behcet’s syndrome, Sarcoidosis, Paraneoplastic syndromes, neuromyelitis optica (Devic’s syndrome), HIV-associated myelopathy, Adrenomyeloneuropathy, other Myelopathy,Spinocerebellar syndromes, Hereditary Spastic Paraparesis, Guillian Barre Syndrome, Polymyositis, Benign Paroxysmal Positional Vertigo, Parkinson’s Disease, Cerebral Haemorrhage, Amyotrophic Lateral Sclerosis (ALS), Mononeuritis,Huntington’s Disease, Post-Infectious Encephalitis, Arteriovenous Malformations, Arachnoid Cysts, Arnold-Chiari Malformations, Cervical Spondylosis and many more.
Not exactly extensive!
If there had been lesions, they would have been commented on, but the fact that it doesn’t say “no evidence of inflammation/demyelination” leaves the possibility open that the neuro did not specify an MS protocol for the scans. I think most scanning protocols include at least some scans that would show MS lesions, but I don’t know for sure - it would be worth checking exactly what scans were done.
Thanks everyone, I have a copy of the discs already so hopefully if I do go private the neuro will have a look at them. George thanks for that info. Karen I feel like it was a let’s do it to shut her up scan! I saw the request form and there was no mention of ms. Looks like I’m back to square one, I’ve not even had any contact from the neurology department. Xx
I agree Nikki
My MRI request said parasthesia on L with ? progression to R toe. ?SOL/inflammatory (demilination)/ischaemic
I was at a meeting on friday and we had the benefit of a neuro-radilogist who talked. One of the he messages was - drs need to write down what they suspect and where they want imaging to get the right scans.
I think going private for your next review is a good way to go - you always transfer NHS after.
I dont think your gp is correct about the brain mri showing only brain tumour.
I only had brain MRI and it showed lesions - which they showed me.
I have never had spinal MRI but was still diagnosed with ms.
I did however also have lumber puncture and evoked potential tests.
Sorry Nikki - i missed this post when i answered the other one earlier.
It’s ok Teresa I hadn’t posted this when you replied to the other one