Hi Carla and welcome to the site
I read your post and the first couple of replies earlier today and became so angry that I didn’t trust myself to reply until now. I’m not going to get into an argument with the originators of some of the earlier and, in my opinion, outrageous(!) suggestions that you received because you do not deserve your post to be hijacked and taken away from replies that might help you and your mum. So…
Your post really struck me because my daughter could have written almost the same opening a couple of years ago: I had pretty mild MS for many years until a nasty relapse in 2010 which left me walking badly and getting horribly tired, along with other symptoms. My daughter really struggled to accept the new me: she couldn’t even look at me the first time I used my wheelchair when she was with me. It wasn’t that she was embarrassed or ashamed or anything; it was the fact that her mum, the person who used to be so fit and active, was so changed - it wasn’t fair! By looking at me in the chair, she was accepting that it was happening and she couldn’t bring herself to do it. Of course, she got over it and is fine with my stick and my chair these days (I use my chair for longer distances, e.g. mum & daughter shopping trips!). Because I haven’t really changed - my body has, but I haven’t. It takes a while for we MSers to accept these changes too though - and during that transition we can be moody, irritable, depressed, etc. That doesn’t usually last thankfully - having MS means having to get used to change; having to adapt. So if your mum seems different to you, but it’s more than physical, it might be that she hasn’t quite worked through accepting her new norm. (Counselling can help a lot with this btw.)
As far as mitox goes, my neuro didn’t offer me mitox at the time and it never occurred to me to ask, but looking back and knowing that if I’d done something then, I might not be as bad now (I went on to have more relapses), I would have been very interested and may well have opted for it. Why “may”? Because I don’t know much about it! And I certainly didn’t then.
Since then, I have learned a lot about MS. I have also made a lot of MS friends. A few of them have had mitox. One has seen a complete stop of all MS activity. One has seen a lot of improvement and has less active MS now. One has had all relapses stop, but is unfortunately still progressing. So, all had significant benefits and none had any side effects worth bothering about. Seems pretty good! Of course, that’s just three people. So I would want to know all the info - what are the potential upsides, what are the potential risks, what are the data (% reduction in relapses, % reduction in progression, etc), what happens afterwards (Copaxone? another disease modifying drug (DMD)?), what happens further into the future - would having mitox mean that I couldn’t access new treatments? I would also want to know the alternatives (and I am not talking about LDN, diet, CCSVI or vitamin D!), e.g. would Gilenya or Tysabri be options? What about Campath? etc…
As soon as my relapse in 2010 started, my neuro took me off Copaxone with a view to putting me on either Tysabri or one of the new oral DMDs that were about to be approved. Unfortunately, I wasn’t eligible for Tysabri because of my MRI scan and the oral DMD approvals kept being put back. In the end, I was off meds for 15 months and it was only that short(!) because I created a lot of fuss to get put onto Rebif44 rather than keep waiting for the oral DMDs. At the beginning of those 15 months, I was a very serious martial artist and superfit. By the end, I was as I am now - using a stick and a chair and on 10 times as many pills. Thankfully Rebif has stabilised my MS and I’ve stopped relapsing. But maybe, just maybe, having mitox early into those 15 months would have meant that the wheelchair never happened?
It’s not an easy decision and I think you are wonderful for being so caring and involved in it all. I hope you can work out what’s the best option and that, whatever you decide, it works brilliantly.