Hallo everyone, I wanted to ask about other people’s experiences in quite an unusual situation. I had a miscarriage about a month ago and am now having a very bad relapse. Has anyone else seen a similar pattern? It feels like I’ve had two huge blows with all this…I guess I’m looking for reasons the relapse has happened (which I won’t ever get) but also an indication if this could happen again with future pregnancies. There are all sorts of links made to increased relapse risk post-pregnancy but scant information about MS and miscarriages. Any help/advice/support very much appreciated. I am struggling. Thank you.
Hi, sorry I cant offer any advice, but just wanted to say how sorry I am about your miscarriage.
Sending hugs (hugs)
Boudsxx
So sorry about your loss and your relapse.
If you have an MS nurse you could ask them or your neurologist may know more.
Take care.
Jen
So sorry about your miscarriage.I had one at 14 weeks into my pregnancy many years ago… I also had a massive relapse 6 week after i gave birth to my daughter, years after the miscarriage, and i was told at the time it was common to relapse within the first year after giving birth.I think its something to do with the hormones why we can relapse, because breastfeeding after giving birth can help prevent a relapse,and i didn’t breastfeed.I would imagine its the same risk of a relapse, with a miscarriage as it is giving birth, as the same hormones are involved.My neuro at the time was absolute rubbish and didn’t have a clue about pregnancy and MS and at the time my massive relapse was put down to post natal depression, even though i couldn’t walk and had double vision and numb down my left side.
Thank you all for taking the time to reply. And for your condolences. I hope you’re all doing OK at the moment. jaydee I’m so sorry for your loss, it is such a difficult thing to go through. And then to have a relapse post-pregnancy and have rubbish support from your neuro, that’s doubly awful to go through. I spoke with my MS Nurse this morning and she actually said she’s seen a pattern of miscarriage and then relapse before. She talked about the hormonal changes like you say, and the stress the body is under which can all be a factor. So it seems anecdotally there is a link. How did you get on with recovery after the relapse you had post-pregnancy?
It took me 6 month to get over the relapse i had after giving birth.It was quite hard as the first 6 months of my daughters life i could not do much for her,i needed a lot of help.I couldn’t take her for a walk as i was only able to walk a few steps.But we got through and after the 6 months, i recovered quite well and then i did not have another relapse for 7 years.I did not even knpw when i was pregnant that you were more at risk after giving birth.I found out the hard way.I had a very easy pregnancy and gave birth after 18 hr labour. with no pain relief at all and loved the birth too.But i was classed as an older mum as i was 35 at the time,so that must have had a lot to do with it too i think.
So sorry for your loss. My miscarriages were very early in the pregnancies, and I don’t remember having a relapse after any of them, but now that you mention it I believe I did have one after the first successful birth. That was 30 years ago, and at the time we just chalked it up to a bad delivery.