I recently came off Gilenya so myself and my hubbie could start trying to a baby. I came off it with the support of neuro on the 9th April, had my 2 month wash out period and we started trying. A month ago I got very bad ON and ended up in hospital. NOT what I wanted!
When I mailed my MS nurse to say I was relapsing and was looking to come in for treatment she replied and said wait a few days, could be infection or you could be pregnant, could be causing the ON. At the time I wasn’t very impressed. Im 10 years on and know when im having a fully blown relapse but I went to GP all the same, got a urine test, checked temp etc and no infection. Was too early in cycle to check for pregnancy so I went to A&E and spent 5 days there on the usual IV steriod. Needless to say I wasnt pregnant when they did the bloody tests. Took another 3 weeks to improve but eyes are almost 100% again. I got really down, was 3 years since I had such a bad relapse, I had forgotten how much it effects you at the time and for sometime later in regard to confidence, drive etc.
Anyway, I now have these intermittent pins and needles all over my body. My face has definatly lost sensation and gettting pins and needle not only is places Ive had them before (offinoffs or what ever you call it!!!) but in places ive never had before. But is seems to be intermittent. I don’t have a temperature or anything and I am wondering, could I be pregnant.
I thought MS’ers were at their best during pregnancy but something in MS nurse’s mail about it being the cause of last relapse is making me think. Im a week away from period so cant do any kind of test but cant stop my mind from wondering…could there be a baby!!!
Any of you ladies who have had babies since your DX have similar symptoms or am I barking up the wring tree?!!
Thanks a million