I was diagnosed with MS in 2023 at 23 years old. I’m a trained dancer and was diagnosed a few months after graduating. I was lucky enough to be given HSCT so my symptoms now are very minimal, I struggle mainly with Fatigue, Brain fog and vertigo. I’m reaching out today to try to find some advice on living a full life and managing my symptoms. I need to find a way to manage time to find a job, still train to dance (I can’t let go of my dream), wash my hair, wax my legs, look after my grandma, set up linked in, spend time with my friends and family, go to therapy, do a food shop and so on and so on and so on. Some might say I’m trying to do too much but there’s people thinking I don’t do enough. Really what’s important to me is training, therapy, and doing an application for my masters but then there’s all the maintanence things and job things and caring responsibilities. All this is to say I just don’t know what to do, I’ve tried spreadsheets, lists, reminders, alarms but I just don’t know how to manage it all when I need to take a 3hour nap in the middle of the day and don’t end up doing half of what I need to do (My legs are hairy and my hair is dirty). Every time I see my Mum she’s saying ‘oh have you done this or that’, ‘you just need to blah blah blah’. I feel like I’m drowning and I’m just wasting all my potential. I’m sure there’s something I’m not seeing or doing or thinking about in the right way. Basically, if anyone knows how to still be a boss bi*ch and manage MS, please let me know.
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You can use all the boss bitch tricks in the book, but you are still left with the irreducible arse-ache of having MS and what that means for the energy and resources available to you.
All you can do is your best. But that’s going to be a different best from your pre-ms best. None of this is your fault. Good luck with it all.
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