Hi Chris and a big welcome to the ppms board!
How do I fill my days? Well it depends so much on how I’m feeling. If it’s a bad fatigue day then I usually spend the day in bed. I refuse to watch any old cr*p on telly, so I go through Radio Times & see if there’s something worth watching… usually a film. I have a telly in my bedroom & also dvd, so I watch box sets as well… at the moment working my way through Rumpole of the Bailey.
I also find lots of good stuff on BBC Radio 4 and 4 Extra… plays and book readings and documentarys.
I always have a book on the go & also have a kindle… so can get exactly what I feel like reading in a few minutes online.
The days when I’m up and about varies. I go out on scooter and do bits of shopping or sometimes just ride around and stop for a coffee somewhere… or ride around the park.
I used to spend a lot of time on Ancestory.com doing my family tree. That was great and very obsorbing & might get back to that sometime.
Really it’s a case of working out what you like doing best and how you can manage to still do it with your MS.
One point though Chris… DLA is given to assist you to do things. So you can get taxi’s or get someone to go to the pictures with you or whatever. It’s not given so that you have to spend all your time indoors and never doing anything. Remember lots of people on DLA still work… so they are going out everyday and working. The DLA is there to assist them doing that… SO don’t let the fact that you get DLA stop you from going out and doing stuff.
Hope this helps. I think the longer you are not working the easier it gets.