Lumbar puncture negative... what next??

New diagnosis and before diagnosis
1

Hi Folks, I wonder if any one could give me advice or their experience of the diagnostic process. In March I had numerous lesions on my brain. I have recently had a lumbar puncture and visual tests which have come back negative. I have ongoing symptoms of burning pins and needles and balance problems. I am however much better than what I was a few months ago.I know I will go for another MRI but I wondered what happens if there are new lesions or if none found then what happens. Sorry feeling really upset today , no idea what to say to friends and colleagues. Any advice would be helpful.

Thanks

Kate

2

Hi Kate,

The process of diagnosing MS is called the McDonald Criteria. It’s complex and relies on an assessment of the number of attacks, and/or the number of lesions or/plus additional clinical evidence.

That’s a very simplified explanation of the process that involves neurologists, neuro-radiologists and a range of technicians. That’s why it can take a while before a specialist can commit to a diagnosis.

When I was waiting for a diagnosis I was always careful to say I was being investigated “for the symptoms of MS”.

Best wishes,

John